- CASE FILE
I have had progressive neurological symptoms for the past 5 years
ABOUT THIS CASE FILE
About 5 years ago I had sharp abdominal pain, and started peeing blood. Eventually that cleared up, but at the same time I started having seizuress, headaches, paralysis, weakness, and memory loss. It's progressively become worse. I've...
About 5 years ago I had sharp abdominal pain, and started peeing blood. Eventually that cleared up, but at the same time I started having seizuress, headaches, paralysis, weakness, and memory loss. It's progressively become worse. I've been diagnosed with Functional Neurological Disorder, but little testing was done, and the FND specialist I saw was a little concerned I'd been misdiagnosed after I turned grey and fainted during our first visit. She says it was very abnormal and she hasn't yet accepted my case due to this.
I had an MRI of my brain when we couldn't diagnose my abdominal pain, but none since the onset of these symptoms. I've had countless blood tests, most coming back normal. I have had 2 eegs but neither captured a seizure. Many ekgs.
Even if I'm not misdiagnosed, I'm still desperate to find a treatment that works. I've been in therapy for years, and had no progress. I've tried many modalities, from EMDR to DBT. I've tried mood stabilization medications. It's extremely frustrating and my quality of life is very low.
My relationship with my family is tense because I can't care for myself and I'm frustrated about what's happened to me. My house isn't suited for a wheelchair and I've primarily been in bed for the past 4 months. I haven't had a shower in months. I can't get up to my own bedroom, or even my sewing machine. This leaves my life lacking purpose or joy. I feel disgusting in my body. I feel hopeless that I'll ever get better. And angry about being alone in my room all day.