• CASE FILE
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SUMMARY

Diagnosed with XLP at age 9. Oldest known survivor lived to 39 years old. Recently diagnosed with two other rare diseases AHUS and HLH.

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MULTIMEDIA

ABOUT THIS CASE FILE

I was diagnosed with XLP when I was nine years old, after my 3 and a half year old brother had passed away from the disease. I have been in and out of the hospital since then. The only cure is a bone marrow transplant. However, I was r ...
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