- CASE FILE
I have suffered from headaches EVERY DAY of my adult life for more than 40 years!
ABOUT THIS CASE FILE
EVERY SINGLE THING I do in my life is effected by my pain. I have to time everything in my day around how I bad it is. I have a variety of other health problems. Sjogren’s Syndrome, Postherpetic Neuralgia (after a really bad case of Shingles), Sensory Processing Disorder, TMJ, various stomach issues (ulcers and a bout with C-Difficile Colitis and probably others (plus ADD and Dyslexia). My theory on that is because I start and live each day with such a deficit, in PAIN, that when I “get something”, even a cold, I get it so so so bad! I have a significant history of trauma from my childhood including (forced Otoplasty [age 10], 13 teeth extracted [age 6-12], lots of falling on my head), plus, according to the psychologist, a lot of emotional trauma (I just thought it was a “normal-ish” amount of childhood trauma!). I have spent a lifetime diving in to all of these possible root causes— individually and as a whole. I have seen ALL kinds doctors from Neurologists to ENTs to Neck & Spinal Physiatrist to several docs at UCSF Pain Management where they have injected all over my neck and even into my jaw for TMD (Temporomandibular Disfunction, as opposed to “ Temporomandibular Joint”). I spent more than 18 months working with EMDR (Eye Movement Desensitization and Reprocessing). I even did biofeedback training decades ago when the headaches first started (around age 16). I participated in the “Botox for Migraines" study at Stanford. I have tried so many alternative healing. Chiropractic (lots!), Acupuncture, Craniosacral Therapy, Neuro-Muscular Reprogramming, Yoga, Pilates, even Korean Ball Therapy. I have tracked diet, exercise, sleep, stress and emotional state, to see if there were patterns that triggered or increased/decreased the headaches. Plus many many more! I have spent tens of thousands of dollars over the years searching and searching for ANYTHING that would even just give me a slight break! After months and sometimes YEARS of working with any given doctor/treatment, ultimately they just tell me, “You have to learn to live with my pain…” (Like that isn't what I’ve been doing for 40 years!) I don't take it personally, it’s just them giving up. I’ve been through that many many times. I certainly understand, I go through the waves of disappointment, and I want to give up too! Which I usually do for awhile. Searching, researching, fully committing to a treatment plan, takes A LOT of time, energy and money!!