- CASE FILE
I have lived with chronic inflammation, sever pain and fatigue since at least age 6. I am a mystery to even the doctors at the Mayo clinic.
ABOUT THIS CASE FILE
Think of living with the flu every single day of your life, that's on a good day. I live with wide spread pain that started as a young girl of 6 years old in my knees. My Knees would ache feel like they were on fire. As a young girl doctors told my parents they were growing pains. Later on we were told growing pains don't exist and that I was just seeking attention. In my early 20's I had my first knee scope where they found I actually had extra cartilage and because of this excessive cartlidge I had torn cartlidge.that in my 30's turned to osteoarthritis. That led to a total knee replacements of my right knee and a partial knee replacements in my left knee all by the age of 36. As I crept closer to 40 I found that my pain was beyond just my knees and now the burning pain shoots down my leg, or up into my hip, into my elbows and down into my hands. I have such bad fatigue now that I have to choose do I work and then crash on the weekends where because I've worked a 40 hour week i literally only have energy to move from my bed to my couch. I hunger to have a social life but can't because it would be at the cost of having my job. I feel that I have lost my life, I cannot do any of the things that bring me joy without causing such horrendous pain and fatigue. It is a burden to anyone around me because I am useless. My family and husband don't know what to do and we are lost. I feel I am a complete burden to my husband who has to do a majority of the cooking, cleaning and shopping. I'm a conundrum to even the Mayo Clinic in Rochester, MN. My SED rate stays anywhere from 40 to 65, I have officially been diagnosed with osteoarthritis, fibromyalgia, Chronic fatigue syndrome, 2 years ago my inflammation was located via PET scan to be in my bone marrow. However after the bone marrow biopsy I was told there wasn't enough cells to determine if I had an infection in my bone marrow or cancer. I was told to not worry about it and to go home and wait to blossom, because sometimes these things take time to bloom. This was the Mayo Clinic saying this. They are supposed to have all the answers when no one else does. Yet here I am a complete unknown aside from there is something potentially growing inside me that could be slowly killing me. Everyday I wake up feeling like I haven't slept. My eyes don't focus, I can hardly bear to walk because my feet hurt so bad, I stumble or forget words, I'm so clumsy, running into door jams, corners of walls, I drop things because my hands just lose strength. I need help and answers. I can't live like this, because living like this isnt living. I pray that there is someone out there that can help me find a cure.