- CASE FILE
For the past 10yrs ive been suffering from Chronic Prostatitis, Perriferal Neurapothy, general ill, weak and tired feeling.
ABOUT THIS CASE FILE
About 15 years ago i was diagnosed with PVC in my heart. Went to the Dr. for symptoms of irregular heartbeat and feeling that i was going to pass out. This became more prominant and frequent. Kept going to the Cardiologist and they kept fiding PVC's but thats it. A couple years later i started getting a weird head ache, wich i never get headachs so i went to my GP. They did a brain scan and found 7-8 white matter spots and sent me to the Nuerologist. They thought i might have MS. said they would do another brain scan in 6month to see if anymore spots showed up. During that 6months i woke up one morning with burning in my hands and feet, 2weeks later felt like i had a UTI. Went back to GP. He gave me Antibiotics that helped but soon after i stopped taking them felt like a UTI again. Went to a Urologist and urin was clean but found Enterococcus Feacalis in my semen. Treated it with antibiotics but again after being off Antibiotics it came back. During the time on antibiotics i realized that my PVC's In my heart went away then came back once off the antibiotics. During this time i went back to the Neurologist for my follow up. They did another brain scan and all the spots were gone, i found this very weird but they didnt seem to concerned. Since then i have had Chronic Bacterial prostititis posative for enterococcus feacalis. I have taken antibiotics about 30 times over the last ten years. Everytime all my symptoms seem to disapear. Have been to 2 different infectious disease drs. The first said something else is going on and that Enterococcus would not cause these types of symptoms, Urologist seems to disagree. Then after having my semen tested multiple times it started testing posative for other bacterias ( citro bacter Koseri, enterobacter, enterococcus, etc.) so he treated me and sent me to a different ID dr. who is familiar with bacterias of the prostate. She said she did believes the prostate is swollen due to bacteria but the rest of my symptoms dont make sense. So she treated the prostitis a few times, i felt great after long term antibiotics, still had some burning in hands and feet but not much. 4 months later all sysmptoms returned. Returned to Urologist for more semen cutures and again, Enterococcus, Enterobacter and Citrobacter. She agrred with the antibitics the urologist had me on, They both agreed that i may need a PICC line. Then the infectious disease dr. decided she wasnt sure if a picc line was a good idea because she felt that there is something wrong causing all of this ( intestines leaking or something) Said she would do a picc line if she was sure it was just persistant bacteria but said she is afraid it is more. She felt that it was really weird that all test are only posative in prostate fluid and why is there multiple ones at different times only in the prostate, never in the urine. Said she wanted to see how it goes without antibiotics and if i get a fever or the shakes i need to go to the hospital immediatly and she would do the picc line. But said she really is afraid that there is something else going on that needs to be delt with before treating the prostititis so agressively. Due to the fear that 6 weeks on IV may do more damage and if something else is going on it would only come back again and be more resistant to antibiotics. So went back to the Urologist, a gastro doctor and MY GP. the urologist thinks this could be all linked to the Prostitits but lately agrees that it is affully strange, gastro dr. doesnt agree with the Infectous disease dr. and basiccaly did nothing. The Urologist keeps testing and treating as nessissary. In the last 10 years i was also diagnosed with diabeties. A1c in normal range but spiking blood sugar levels. They even gave me Metformin to see if that was causing anything but the first ID doctor i saw said the bacteria is whats probably causing the spiking blood sugar and thinks i have lyme disease. i test 1or2 bands posative and felt that at some point i was exposed. Said lyme is probably the start of everything. I live in the hudson valley which has the highest rate of lyme in the country and lyme tests a poor excpessialy after all the anibiotics ive taken. The new ID doctor doesnt agree and said theres got to be something else wrong. Urologist think that Lyme may cause alot of my problems but said he cant be sure. I have always been healthy without any health issues before this all started. Ive been to so many doctors and have not got anywhere. The only thing that is for sure is that antibiotics are the only thing that works for all my problems and symptoms. If it wasnt for the Urologist treating the Prostitis which somehow makes all of my other symptoms go away i wouldnt be able to deal with it. I am really concerned that the Infectious disease dr. maybe right in that something is really wrong here and that the Enterococcus in the prostate is a red flag, not the real problem. This condition has made me feel terrible, im ready to go on antibiotics again just to feel better. Im trying to only take them when absolutly nessisary in feer they will kill me one day. This is ruining my life and i need help and answers bad. Please Help!