- CASE FILE
My family became critically ill off and on since 2008. All NYC hospitals CHOP said we are a mystery. Formaldehyde poisoning culprit 8 yrs
ABOUT THIS CASE FILE
My son was born premature in 2004 with some food and environmental allergies. He was diagnosed with Celiac Disease at 4 and was speech delayed. All our teeth in the family started breaking. My dog and I were misdiagnosed with lung cancer, lymphoma, thyroid cancer, sarcoidosis. I was diagnosed with vocal fold paralysis in 2011, lung masses, collapsed lung, inflamed lymph nodes and a severe cardiac myopathy that was life threatening. I was diagnosed with retinal damage, my son was diagnosed with a lazy eye and severe vision loss in one eye. My son didn’t speak until he was 7 years old but was a mystery to every doctor at Children’s Hospital in Philadelphia because his receptive language skills and hearing were fine. My son was misdiagnosed with Autism. My husband developed severe sleep apnea and severe arthritic hips needing two replacements shortly. We started developing panic attacks that were so life altering that no anxiety medicine would work. We all developed severe vitamin D deficiencies, poly neuropathies in legs, vocal fold paralysis, severe chronic pain, difficulty walking, falling for no reason, anaphylaxis, difficulty speaking and breathing, constant pneumonia, severe dental problems. The dog and I were misdiagnosed with cancer and both diagnosed with primary hyperparathyroidism and low hypothyroidism, kidney problems, severe insomnia, disfiguring psoriasis and eczema. The list goes on and on. In 2008, we put engineered hardwood flooring throughout our entire home recommended by allergist to help our son’s allergies. After 8 years of getting sicker and sicker, surgery after surgery we found out that we were all poisoned by high amounts of formaldehyde. We had no idea and had the windows shut year round due to our son’s allergies to grass and tree pollen, severe drug allergies and reactions to allergies meds. My son was forced to be homeschooled after 1st grade due to schools not following doctors orders and causing anaphylaxis. We all developed sensory problems. We had outgrown every doctor in NJ and were seen by every major hospital in Manhattan including, MSK, HSS, Weill Cornell, Columbia and NYU. We were never notified by the flooring manufacturer and big home improvement chain that our very expensive flooring made in Brazil when they knew. My husband was forced to retire early in 2015 after being an operating engineer in Manhattan for 35 years at 55 years. I gave up my career as a Package Development Executive Director in the Cosmetic Industry for 20 plus years and a lucrative hobby gemstone business. Our out of pocket medical and expenses after insurance are close to a 7 figures. Our friends, employers, school district and family thought we were lying or exaggerating this but this only touches on part of this horrific story. We never applied for disability because we were too sick to even go through the process. On top of everything my father in law was killed on United Flight #93 on 9/11 and my mother just passed from breathing all that toxic air working as a University Professor 2 blocks away from WTC during danger zone from non genetic stage 4 Metastatic Ovarian and Stomach Cancer. I was unable to attend her funeral because I was scheduled for female surgery last year to remove cervical polyps and uterine tumors on the same day. We are still very ill due to not being able to find a toxicologist to help us. We also live in a high Lyme disease area but no one has treated us after several bites and false positives. It’s been a nightmare beyond belief. We are so worried about our son who is falling for no reason and suffered significant recent neurological problems. We don’t know whether he will be able to enjoy a decent life. We’ve been to 100’s of doctors appointments each, 250 tests including biopsies, PET scans, Pulmonary Function Tests, Echo, Nuclear since 2008. Please help us....