- CASE FILE
I have been diagnosed with so many different things and am on so many different medications yet NOTHING is helping. I still suffer daily.
ABOUT THIS CASE FILE
Only 38 and have been diagnosed with so many different things and put on so many different medications, I feel like a lab rat.
I feel like there is NO hope and that suffering daily is what I have to adapt too.
It started right out of high school, I kept ending up in the ER . I swore I was having a stroke ... they would shoot me up with morpheme and send me home, where I would puke and suffer all night. Turns out it was Horrible migraines I was having.
Around the same time I started to feel VERY lethargic and I was always freezing. After many more trips to the doctor I was finally diagnosed with Hypothyroidism. I was started on levothyroxine and was told that would help. Unfortunately although my levels do come back in the “normal” range, I have never felt “good” I still feel “symptomatic”.
In 2007-2008 I started having horrible neck pain. Some days it would be totally fine and then some days..... literally paralyzing pain. After seeing a specialist and many MRI later... I was diagnosed with degenerative disc disease. I ended up having a disc fusion surgery after the disc causing me so much pain ruptured. Since the surgery I have developed arthritis and now the disc above and below the fusion site are causing me pain.
In 2006 I was married. My husband and I dreamed of having a family. We wanted to start trying to have children fairly soon in our marriage. I stopped all birth control and for four very LONG years we tried religiously to get pregnant. Nothing was working. We saw a specialist and tried many oral medications to “boost” our chances yet nothing worked. Our last hope was Ivf . This meant tons of test, needle sticks, medications that make your ovaries VERY stimulated which causes major cramping and just “uncomfortable “ feeling. However if it worked it would all be worth it. We saved and saved to pay the $15,000 IvF treatment. Then it was time to wait. Would it work? We where literally putting all our eggs in one basket. Turns out I only produced 4 “follicles” and of those only 2 “fertilized” and they were grade “B” (I know, sounds like we are shopping at the super market) not ideal but I had HOPE. They want the embryo to be grade A to have the best chance to have a successful pregnancy. My husband and I decided to try anyway and we’re BLESSED with the most perfect daughter. Fast forward down the road two years and we ended up doing another round of IVF this time they gave me higher doses of medication and I produced more follicles. I ended up having twin boys from that batch. What a miracle and blessing.
I felt like that is important to say because the emotional and physical toll that plays on your body and soul is down played in society. I ended up having two cesarean sections. My body has NEVER been the same.
A short time after the twins birth I had to have my gallbladder removed due to many unbelievable attacks.
The amount of stress and trauma to my body in just three short years was really catching up.
I started to get stiff joints and could barely walk my feet hurt so bad. My hands were also hurting and after many trips to the doctor they found out I had Rheumatoid Arthritis and Fibromyalgia. On top of that I had high blood pressure and major depression and anxiety.
They started me on cymbalta after the twins birth. I have been taking that for almost 6 years now and don’t feel like it’s doing anything to be honest. Well except making me gain 50 pounds that I lost after the birth of my twins. Very Frustrating.
At this point I am just in a “over it” mentality. I have symptoms EVERYDAY yet I’m taking all these medications that are supposed to help. They don’t. I quit going to the doctor except my check ups because nobody really cares. They want my copay and refill my meds and says it just takes time. My twins are 6 now... 6 years is long enough. Something has to give.
My husband tries to understand but doesn’t “get it” at all really. One day I am “ok” so I can give more of myself to the house chores or playing with the kids and then some days I can’t get out of bed at all. I hate it. My kids don’t understand, my husband doesn’t understand, hell I don’t even understand.
I’m desperate for a true diagnosis . Not one they think I have and throw medicine down my throat that does nothing but make me more sick from all the side effects. I am actually on a chemo medication right now for the Rheumatoid Arthritis which is so beyond bizarre and sick to me that I am so desperate I shoot this poison into my body every week.
Please help! I’m an open book and I am so beyond ready to get the right diagnosis and take back my life!