- CASE FILE
38 year old female, in the past 3 years went from healthy to losing the ability to walk and then became completely bedridden. No diagnosis.
ABOUT THIS CASE FILE
I am writing on behalf of my sister Jessica. In 2013 she gave birth to her daughter Zoe. Gradually after giving birth things started to happen, shaking, forgetting things, slowness she forgot how to ride a bike and numerous other things that she was doing on a daily basis. In 2015 she was sent to a neurologist who diagnosed her with Parkinson's, after months of medication that didnt seem to be working we got a second opinion. We were told by other neurologists that she didnt have Parkinson's and that they didnt think anything was wrong, maybe just some anxiety and depression. In March of 2016 she was given some antidepressants and antipsychotic drugs that made her very strange so I discontinued letting her take them almost immediately. Within one week she was shaking so bad and unable to walk. We at that point had her admitted to University of Michigan hospital. She spent a couple weeks there and they couldn't find a definite cause for what was happening. She was discharged to a inpatient rehab unit at a different hospital where she spent 5 weeks. She made some progress and was able to use a Walker with some help. After coming home she got progressively worse and in October 2016 we took her to Cleveland Clinic. They also did numerous test and could not find anything wrong. She has been in and out of U of M many times since then. They still cannot find a reason for whatever is going on. Jessica is completely bedridden she cannot feed herself or do anything anymore. We have been given so maybe reasons from the original Parkinsons to possible NBIA (neurodegenerative brain iron accumulation), to some kind of neurologic brain issue. We are hoping someone somewhere has some kind of information as to where we can find some help for her.