- CASE FILE
Dizziness, weakness, blurred vision, hyperacusis, tinnitus and chronic headache. History of temporal lobe brain tumor and pineal cyst
ABOUT THIS CASE FILE
In 2013 I was diagnosed with, and underwent surgery for, a left temporal lobe grade 2 astrocytoma, previously classified as an oligodendroglioma. A pineal cyst was also discovered and has grown from 10mm in 2013 to 15mm in 2019. It was also noted that there is thinning of the bones in my ears, but not a true third window that would classify it as SSCD.
Prior to surgery I had headaches and tinnitus (ringing in the ears). Since surgery these symptoms have worsened and I've developed dizziness, hyperacusis (sensitivity to sounds), tremors, weakness and frequent change in sleep patterns.
I have difficulty going anywhere because the hyperacusis is so severe. I am wary of stairs most of the time because of the frequent dizziness and weakness.
I have tried vestibular therapy and Meclizine for the dizziness and sound therapy for the hyperacusis. The hyperacusis has improved some over the two years I've done the sound therapy, but is far from resolved. Using earplugs makes the tinnitus worse.
I have received conflicting opinions regarding whether the pineal cyst is causing any symptoms or if it's my inner ear...or both. Either way, both of their treatments require invasive surgeries, which are not guaranteed to fix all the symptoms.