- CASE FILE
Quite simple really: I have ME/CFS.
ABOUT THIS CASE FILE
I woke up with a "flu" in Feb, 1989. This flu never went away. Many doctor visits led to the usual diagnosis of "it's in your head." Please keep in mind, these diagnoses were given before ME/CFS was recognized by the medical community. I consequently stopped going to doctors and simply decided to chase the cure myself. This has led to some rather extreme self-experimentation (yes, this is frowned upon by Western science, but what choices have I had?) and perhaps some critical insights into the disease. To my knowledge, no other CFS patient has done the types of self-experiments to the degree that I have.
Fast forward about 22 years, and I started working on my own "theory" of CFS: There is a vicious cycle involved. Dr. Ron Davis of https://www.omf.ngo/ now agrees with my vicious cycle theory (yes, I presumptuously refer to it as a "my theory"), although he uses the term "metabolic trap." Six of one, half dozen of the other kind of thing.
Although I am convinced that there is something to this vicious cycle/metabolic trap thinking, I also believe that there is something else going on. I now have an "ancillary hypothesis" which might be the missing piece of the puzzle: The microbiome of the ENT system is off. Yep, that last sentence is perhaps the key to ME/CFS. Research of humans' microbiomes views the human body as a drinking-straw type construction. Essentially, we are tubes with an inside and outside surface. Ahh, but this misses the surfaces of the ENT system, perhaps even the pulmonary system. This is much more than a hunch at this point. Much self-experimentation has supported my hypothesis. Am I convinced that this is the missing key? No. But it certainly should be investigated.