- CASE FILE
My name is Cindy and I am 44 years old. I was diagnosed with Gi sarcoids in 2013 and was hospitalized with organ shut down.
ABOUT THIS CASE FILE
I was diagnosed with sarcoidosis in 2013 and now lupus . I have been a medical phenomena to my drs due to the location of my sarcoidosis and have been treated on 8 different medications with no success. My 4th rheumatologist now feels I also have lupus ?????? I have been through hell and back since 2013 and came close to death with pancreas shut down as well as liver and left lung collapsed at the same time drs at upmc in pittsburgh couldn't believe what was going on and said at that time i did not have lupus. I took clomid to try and conceive my daughter 3 months before the organ shut down . I was healthy and did not drink or smoke at this time or much for that matter. Throughout the past two years a skin punch biopsy revealed I had small fiber neuropathy and sarcoids was to blame so then I was diagnosed with neurosarcoids. I did not have any other biopsies or scans done of my spinal area or neck other then an X-ray to even confirm this . I have lost my life for the past 6 years and am begging for help. I just want to feel better and be able to live without severe pain throughout my body. My medical records are extremely detailed and very difficult to piece together as i am a living guinea pig. I was the girl next door, sister , aunt and friend. This stuff isn't suppose to happen to people. Please help me.