- CASE FILE
Diagnosed with a rare genetic blood clotting disorder. Very life threatening. No research, no cure!
ABOUT THIS CASE FILE
It Won't let me type in symptoms or conditions. My blood is so thick it clots in my liver and my heart pumps those clots through my body. There's little oxygen in my blood cells and I'm anemic at the same time because I have to take blood thinners the rest of my life. Necrosis is starting in my ankle because the blood doesn't circulate back to my heart and flows backward. The valves in my legs are damaged and I was told they can't be repaired. If I need bypass surgery one day, I'll die because they can't use the vein now. This illness I was born with mutated from both my parents and is life threatening. It severely impacts my way of life. I cant be normal since I got blood clots at 18, cant have kids, cant do high intense exercise, have to be cautious in every little thing I do. I now have painful swollen lymph nodes all over my body with no explanation. No one understands because there's little to no research and rare so no one cares to learn about it. I'm always judged for it and have even thought about suicide because the pain is too much to carry the rest of my life.