- CASE FILE
Struggling to find a diagnosis for what seems to be a disease called mast cell activation syndrome I go into anaphylaxis for no reason
ABOUT THIS CASE FILE
I have been struggling to find a diagnosis for what seems to be a rare disease called mast cell activation syndrome. I’ve been to many doctors and stayed over nights at hospitals and leave everyone in shock of what this could be. I go into anaphylaxis for no reason along with what looks like a seizure but is not (ruled out with testing). My body used to be covered in hives. I gained 60 lbs from trying different medications that ultimately failed. I also can’t control my body temperature and sweat a ton even when it’s cold. My eye ask gets swollen internally with numbs in it.