- CASE FILE
I’ve been sick most my life with no answers quadriplegic seizures stenosis rheynaulds disease chest pain gastritis Barrett’s esophagus
ABOUT THIS CASE FILE
I have so much going on with me and no answer to what’s causing it or how to fix it I’m quadriplegic have fatty liver disease neuropathy Barrett syndrome stenosis scoliosis degenerative disc disease arthritis whole body I can feel pain but not touch and my feeling comes and goes as well as everything listed above I’ve been sick most of my life with no answers. I’ve been in out of wheelchair since elementary school where my body would just give out my hands and body have always been weak wasn’t able to be active my bones would break all the time. I’ve had seizures off and on since I was 4 1/2 years old and this time haven’t been able to get rid of Before I was born my mom had guillen barre syndrome and when I was born I wasn’t breathing and very complicated pregnancy. I don’t remember much after that till I was 41/2 years old and had febrile seizures meningitis and encephalitis of the brain. I almost died after that I had nothing but problems. The seizures went away till I was 10 and they came back but different they were full body seizures everyday. I have always had weakness never had strength growing up. In elementary school I had over 20 broken bones I was always tired couldn’t really run my legs would give out on me. I was told I had ashtma I was always sick and out of school with bronchitis more than anything my dr couldn’t understand why. When the seizures started up I had a 2 hour seizure I was out eating in a wheelchair. I had broken my big toe and couldn’t balance with crutches so I had to be in wheelchair. And all the sudden I started having shakes and next thing I knew I was in the hospital lost my entire memory didn’t know who anyone even my parents were. I started acting like a 5 year old talking like a baby and I was in middle school. Had to be home schooled I started writing and reading backwards and upside down a lot going on. Took 5 years for a dr to tell me they were seizures every dr would say I was faking and doing it for attention. I was in constant pain with my knees and back and one day I did a X-ray to see if I had phemonia and saw I had scoliosis and compressed fractures my orthopedic couldn’t understand how I had so much wrong that older people get when I was so young. The seizures went away with medicine and didn’t come back till I had a ovarian cyst removed 10 years later and gave me Percocet I was extremely allergic to caused the seizures to come back and almost killed me. After that started having even more problems couldn’t walk again got the shakes had problem with speech thought it was a stroke mri was normal. My memory was going again had a hard time thinking breathing no energy always tired in constant pain with most my body. Joint pain found out I had arthritis in both knees my knees would swell to where I could barely move. Ever since I was little I’d have severe chest pain it got worse the older I got. I was working got dizzy sharp pain in my chest sharp pain going up my left arm couldn’t breathe thought it was heart attack but everything was normal. Started feeling sick all the time severe pain in my stomach I could barely work. I have enlarged liver and spleen and fatty liver disease. My gallbladder severely diseased so got that removed the pain came back then found out I have barret esophagus and was on medicine it didn’t help. A couple years later I got diagnosed with gastritis and severe acid reflux and the medicine I was allergic to I’m allergic to almost everything and nobody knows why. I started falling asleep at work and my legs gave out after that I slowly became paralyzed starting with my feet and then took my entire body even face and mouth I couldn’t talk or move. I went to hospital again thought it was stroke but everything normal. My arms and head came back but my legs didn’t and completely numb. Was sent to rehab I had mri of my entire back have arthritis stenosis degenerated disc disease bulging disc and scoliosis and no one knows how it got that bad at my age I’m 28 now. I have neuropathy quadriplegic now seizures headaches every day dizzy every day atrophy of my hands rhuematoid arthritis in my feet severe foot drop. My feeling comes and goes my feet stay numb memory problems thinking problems barret esophagus gastritis asthma chest pain tired all the time was told I have low oxygen when I sleep vision loss ringing in my ears every day arthritis most my body. I have problems eating where I’ll start gagging like my stomach doesn’t want to eat and really bad cramps in my feet where they will actually start shaking really bad. I’m like a young woman trapped in a older person body and no explanation as to why it’s ruined my life I need answers I hope you can help me. Its taken everything i love from me including my husband. He left me last year cause he didn’t want to take care of me anymore once I became quadriplegic. It’s been really hard knowing that me being a quadriplegic ruined our marriage I keep hoping things will get better but I keep getting worse I need answers please if anyone is going through the same thing or might know what it is any help would be great. I just got a new primary dr that wrote referrals to a neurologist rheumatologist and gastroenterologist so I’m hoping they can give us some answers it’s very frustrating not knowing if this is my permanent life now.