- CASE FILE
2/13/2018 had peritoneal lumbar shunt removed. too much CSF being taken. Was told shunt(s) "decintegrated". Have been in pain ever sense
ABOUT THIS CASE FILE
1990 - Pseudo tumor cerebri, peritoneal lumbar shunt(s) as treatment; 2017-2018 blinding headahes return - it was decided that the shunts were taking too much CSF; 2/13/2018 peritoneal shunts "desentigrated" when attempted to be removed. The post op experience was gruesome. No antibiotics, no pain meds. May 20, 2018 I had what I thought was a good day, fixed dinner for myself and my son when out of no where I started to feel sick all over. I started having violent diarrhea, nausea, dry heaves to the point of gagging. I couldn't stand up and when I did my bowels ran down my legs. I was diagnosed with CDIFF. In March 2019 out of no where while I was seated comfortably in my favorite chair, the muscles in my neck tightened and it seemed that the muscles covering my skull were being pulled tight and those around my eyes began to hurt. The muscles can be visualing seen tightening. I had a doctor touch the area, and the response was "Wow, you need a massage". I've been going to the doctors forever without any relief or diagnosis. The pain I have now is crippling, and the muscles in my left upper thigh begin to atrophe without provocation or warning, the pain sometimes seems to come from my lower groin towards the front. It took doctors 10 years to diagnose Pseudotumor Cerebri.and put in 3 failed shunts before they finally found something that worked. I'm 63 years young and don't have another decade to live in pain before this can be figured out, so I am appealing to you. During a recent endoscopy/colonoscopy it was discovered that I have Barrett's esophagus. This also has materialized out of nowhere just as the debilitating pains that literally double me over to the point I cannot stand or walk. So far the only treatment I've received is perscription pain meds. I've had countless CT scans, MRI's, and have been diagnosed with Diverticulosis. I have been told that diverticuli are usually found in one or a few areas of the colon, but that my entire intestinal tract is covered with these out pouchings. I'm tired of doctors throwing pills at me. I desperately need doctors who are willing to take time to go beyond a cookie cutter diagnosis and find the cause and the cure of the symptoms I'm experiencing.