- CASE FILE
I have many symptoms that match with several autoimmune diseases; but, my blood work is inconsistent and doesn't allow for a diagnosis.
ABOUT THIS CASE FILE
I've had many health issues over the years. It would take pages to go through all of them. I can provide those details, if needed. I'll start here with 2008. After a couple of years of fatigue and other vague symptoms, I was diagnosed with Fibromyalgia and Sleep Apnea in 2008 . However, I developed other, more concerning symptoms, as early as December 2015 and have continued up through today. Some of my symptoms are vague or can be easily misconstrued for other issues. I initially started having joint pain in my hand and my PCP took x-rays both in Jan 2016 & Jan 2017. But, nothing unusual showed up on the x-rays. I then developed thrush, which went on to include dry mouth and dry eye symptoms early in 2016. I went on to be diagnosed with Dry Eye Syndrome and they did the Schirmer's test, which met the criteria for Sjogren's Syndrome in Sept 2016 . I saw an oral pathologist who diagnosed me with severe dry mouth (no saliva on a non-stimulated saliva test) in March 2017. In the meantime, I saw a Rheumatologist who was useless and stated she couldn't do anything for me. I then moved on to another Rheumatologist who has done a better job listening to me; but, still hasn't been able to provide an official diagnosis. Here I am, over three years later and I continue to have fatigue issues, as well as joint and muscle issues, as well as occasional hair loss/thinning. I feel like my symptoms are progressively getting worse. I meet the criteria for Sjogren's Syndrome based on the eye test and the dry mouth; but, I do not have any of the antibodies showing up in my blood work to confirm a diagnosis of Sjogren's. I also had a mild positive for vasculitis at one point; but, I do not have anything obvious for them to identify what type of vasculitis and I have since been negative for vasculitis. So, I'm basically in pain or feel drained of energy on a daily basis and I don't know why. It uses all of my energy just to go to work every day. I continue to push myself to go to work because I need to pay my bills and I need the health insurance for whatever is actually wrong with me. My friends are empathetic; but, they truly have no idea how I feel and they cannot understand the fatigue issues. Just like most people, they think I'll feel better after I get some sleep. While some sleep helps, it doesn't solve the true fatigue issues. At this point, I would really like to have an official diagnosis with a proper treatment plan.