- CASE FILE
I struggle w/various forms of chronic illness/pain/fatigue. Just diagnosed w/IIH. In constant pain, tired, swollen, spasms, cramping, etc.
ABOUT THIS CASE FILE
My "other" diagnoses are: Idiopathic Intracranial Hypertension, Fibromyalgia, Restless Leg Syndrome, Trigeminal Neuralgia, Neuropathy, Degenerative Disc Disease, Acid Reflux, Pulsatile Tinnitus, Edema, Spontaneous Nausea and Vomiting, Left ear still plugged over a year and a half later since they put tubes in, Chronic Fatigue, Binge Eating, Insomnia, stress infections, Astigmatism (left eye never fully developed), Tendonitis, prone to Bronchitis and Pneumonia, full dentures by age 33 due to uncontrollable infections that no one could figure out, OCD Tendencies, Chronic Inflammation, TMJ, Childhood and Adult Trauma, etc. Most recently was the IIH diagnosis. I'm constantly dehydrated I believe because of all the diuretics. My Physical Therapist couldn't understand why I was still in so much pain in my back (had a failed spinal fusion back in 2006). I got tubes put in last year and my left ear has been plugged ever since and they can't figure out why. I've also devoped Pulsatile Tinnitus since then. The Trigeminal Neuralgia came on out of nowhere at age 30 and they don't know why (I ended up with it on both sides also). The Neuropathy began out of nowhere last year also. The spontaneous nausea and vomiting can get to the point of where I lose a pound a day. They took out my gallbladder, but I still get this and they don't know why. I've had stomach issues since I was a child and have had several colonoscopies and upper endoscopies already only to be told it's IBS (which I get both constipation and diarrhea) and have never been able to regulate it, ever. The edema comes out of nowhere and can last from hours to weeks. The Fibro is unbearable as far as touch and that flu like achiness from head to toe. I contracted Scarlett Fever at age 21 and have often wondered if that didn't have something to do with any and/or all of this. There are so many things diagnosed with no clue as to why that I truly believe they are missing something. I feel like I've been a guinea pig for medications, surgeries, doctors, tests, etc. and it just gets so tiring. I began to isolate myself years ago after filing for disability due to it just gets to be too much to keep explaining over and over again. I've become a shell of the person I used to be and new stuff just keeps popping up and I don't understand why......