- CASE FILE
I have Lyme Disease and Co-infections, Mast Cell Activation Syndrome, and POTS Syndrome, along with dizziness and gastrointestinal issues.
ABOUT THIS CASE FILE
I was diagnosed with Lyme Disease and Co-infections (Babesia and Bartonella) six years ago. After being treated for about four years with antibiotics and herbs, I was feeling some improvement. The antibiotics that I took over the four year period were Minocycline, Bactrim, Malarone, Augmentin, Doxycycline, and Azithromycin. The herbs that I took were Cryptoleptis and Sida Acuta. However, I got a steroidal injection in my lower back to help with an injury, and it reactivated the Lyme Disease and Co-infections. I began to feel worse, so my Lyme Literate doctor at the time gave me more antibiotics to help treat my symptoms that flared up again after the shot. After taking the antibiotics, I was diagnosed with Pancreatitis, so I had to stop everything my doctor had prescribed to me. I'm not sure if it was the duration of the antibiotic treatment that caused the Pancreatitis, or if it was one particular antibiotic (Bactrim) that my doctor increased the dose of for severe neuropathy since the injection. After this, my lymph nodes in my groin became inflamed, and I needed to get them biopsied. Luckily, they were completely fine. During this time, I was experiencing gastrointestinal issues, so I had an endoscopy and colonoscopy done to see if my stomach pain and bloating was related to the Pancreatitis. Four days later, I had a severe rectal bleed, that caused me to become unconscious, extremely pale, and have blue lips. An ambulance had to be called and I was rushed to the hospital. I lost a lot of blood, so I had to do ten weeks of iron infusions, but I feel like I should've probably been given a blood transfusion. Ever since that one fainting episode, I've experienced at least 7 other episodes where I become unconscious, whether I'm standing or sitting, and ambulances had to be called constantly. I've also always been dizzy and lightheaded ever since the first fainting episode and a doctor in the hospital said it could be POTS Syndrome. However, when I have these fainting episodes, my blood pressure and heart rate are not like those who have POTS Syndrome. This makes me think that POTS Syndrome is probably not the reason for my dizziness and fainting. I was given Midodrine to try to help with the fainting, and it has helped to a certain extent, but I've still had some very close calls to fainting again, and I'm still dizzy and lightheaded every single day. I was also diagnosed with Mast Cell Activation Syndrome around May 2018. A lot of the symptoms of this syndrome are very similar to those of Lyme Disease, so it's very difficult to know what is causing them, but I'm getting sicker, and need treatment for my ailments. Right now there's two opinions about my health and one is saying it's Mast Cell Activation Syndrome, and the other is saying it's Lyme Disease, and I'm not sure what to do and I need one solid answer regarding what is wrong with me. It seems that I also have a mild case of Bells Palsy because my left eye and eyebrow are lower than my right. For several months, I have trouble opening my left eye in the middle of the night or in the morning when I first get up, and I'm not sure if that is related to the Bells Palsy. In addition to the symptoms listed above, I also suffer from severe brain fog and memory loss both short and long term memory. My ears constantly ring every single day, and I have a stabbing sensation in both of my ears. I have neuropathy and it makes me feel like I have sunburn. I also experience tingling and numbness. The ejection fraction of my gallbladder is 15% and my Lipase seems to be elevated often with no explanation, and I'm not sure if these two pieces of information are related to each other. I have stomach pain and nausea, and I don't know if it's related to my gallbladder, Lyme Disease, or Mast Cell Activation Syndrome. I have a limited diet because I notice that a lot of foods that I used to eat cause more pain and nausea. I'm currently not on a treatment regiment for Lyme Disease and Co-infections and Mast Cell Activation Syndrome. I'm in dire need of help. I can't work and can barely drive so I barely leave my house each day. I haven't been on a vacation in so many years, and I haven't seen the beach in three years, which is my favorite place to be. I'm missing out on a lot of things that matter to me because I'm just not up to being apart of it. My symptoms have made my daily life extremely challenging and it has been so hard for my family as well going through all of this. I just want to be normal and healthy and be able to experience life again.