- CASE FILE
Was diagnosed with Secondary HLH, hospitalized for a month been thought to have cancer, lupus, to now just unknown autoimmune disease???
ABOUT THIS CASE FILE
Was diagnosed with HLH while in hospital and was being prepped for bone marrow transplant. My red blood cells, platelets, white blood cells everything was being killed off. Was given research drug and high steroids which allowed me to go home but haven’t been better since. Since have been diagnosed with Lupus and fibromyalgia with anxiety and depression, chronic fatigue. But now saying they don’t think lupus they really think an unknown autoimmune disease that we don’t even understand yet??? Was completely healthy before and now my husbands body seems to be just withering away. Been to two major hospitals and countless doctors and natural path doctors, DO’s and everything in between and no one can understand what is happening to make him so sick. Most days now he deals with general uneasiness. No fevers now but he feels awful almost every day may get 2-3 days a month where he feels closer to normal. He explains it like the worst hangover imaginable but on along with severe aches and joint pains, headaches, weird nerve sensations throughout his body, cognitive issues, memory loss frustration. He has always been the most level headed and calm person, but now can flip so quickly becoming angry very quickly. Not a normal characteristic