- CASE FILE
Having a lot of physical and neurological symptoms/pain and my doctors won’t listen to me and I hope they don’t wait until it’s too late
ABOUT THIS CASE FILE
I was diagnosed with a rare autoimmune disease called polymyositis June of last year. Before that I was diagnosed with neuropathy, ocular hypertension, migraines, sciatica problems and the list goes on... as of lately my visual disturbances have been getting worse, I’m seeing blue, yellow, green, purple and red spots and/or lines. I see stars” and black spots in my peripheral vision. Also I see halos around lights, and if I move my eyes a certain way it causes pain and/or headaches. Also I’ve been having uncontrollable throbbing in my right temple that goes behind my ear and into my jaw that also causes a burning sensation on the right side of my jaw/face/head. I can’t lay on my right side or on my back anymore because if I do it’ll cause my temple to throb bad or cause my head to hurt terribly. And with that is very bad muscle spasms in my shoulders (especially my right shoulder) and neck. I’ve always had migraines since I was 12, but this head pain is VERY different from a migraine. It’s unbearable. It’s constant and it’s taking control of my life and I try to tell my doctors all the symptoms but they don’t listen and I fear it’ll be too late by the time they find out what’s wrong with me. I’ve taken every medicine you can think of, in and out of the hospital and no one can tell me what’s wrong and just label this as a “bad migraine”. I just want someone to tell me what’s wrong so I can go back to living my life normally. I feel like I’m trapped in a prison, and that prison is my body.