- CASE FILE
I’m 40yrs and about 10yrs ago I was diagnosed with a syrinx. The cause of the syrinx is still a mystery. Many doctors and no answers.
ABOUT THIS CASE FILE
About 10yrs ago I went from running everyday to losing the use of my legs over night. I was diagnosed with a syrinx caused by an unknown condition. MRI’s showed a mass which was thought to be a tumor. That was later proven not to be the case. Doctors still aren’t sure of the cause. The syrinx causes extreme leg spasms and prevents me from walking. Not only does it prevent me from walking but it stops me from sitting for extended periods of time or even sleeping more than a couple of hours each night. I’ve had spinal surgery, which did nothing. I’ve taken different medications and tried rehabilitation, still nothing. My family and my community have rallied around me and have been by my side throughout this life changing event. They helped me purchase a hand bike so I could get outdoors and ride around. I’m seeking help for multiple reasons. I’ve been to some of the best hospitals in the country, possibly the world, and still I have no relief. I’ve been to the Mayo Clinic, the University of Michigan, and others. I have two young daughters and a beautiful wife. I would love to one day be able to walk my daughters down the isle but right now my focus is just being alive to see those types of events. I’m a fighter but I’m not sure how much longer I can continue to battle this issue. Thank you for listening.