- CASE FILE
18yr old disappearing hemoglobin/blood no internal bleeding no labs showing any condition 25 units of blood since Easter.
ABOUT THIS CASE FILE
On Easter morning 2019 Alexis passed out on the stairs in our home and hit her head, Vomiting when she came too, making me think she had a virus. We waited a till her home health nurse came Monday but with her B/P at 90/45 and her pale skin high heart rate and fatigue, the nurse sent us to children ER. We arrived that afternoon her heart rate was 140-160 bpm she was sweaty and so pale. they rushed her to trauma and ran every test possible. One thing stood out, Her hemoglobin was 7.8 and she was symptomatic. The admitted us and her first 3 units of blood didn't move her hemoglobin at all. The doctors were very intrigued and everyone came to study her. 2 weeks later after multiple tests and more blood and all of it disappearing, she was sent home with no answers. We had to continue 3 weeks outpatient AFLAC visits driving over an hour and a half each way or more in traffic. The 3rd week was horrible and Alex left with a hemoglobin level of 6.4 and was not happy with the care, so we went to Emory they gave her 3 units of blood adding her total blood units to a whopping 17 units in 6 weeks. After 8 days at Emory and an overload of 5 units of iron she was sent home again without answers. She continues to drop hemoglobin every week her lab work shoes possibly that she has a bone marrow or kidney communicating with bone marrow red blood cell production problem. She finally got her hematologist to order a bone marrow biopsy we will see if there are any results from pathology if not we are stumped she has already had doctors blame her and ask if she was doing something herself because they don’t know what it could be . First time every I bet someone has prayed to have cancer just so they could have a diagnosis and get treatment instead of being blamed and continue having to suffer loosing blood every week and sitting in the hospital every week for 8 hours to get someone else’s blood just to live ! Please help us diagnose my daughter so we can get her healthy and enjoying life again!