- CASE FILE
1/26/2015 Awakened by left side headache 8/10 or greater that NEVER (24/7) goes away, Holme's Adies's Syndrome diagnosed after onset of HA
ABOUT THIS CASE FILE
I am a nurse with a long background of emergency nursing in a rural area. While in nursing school 2001, I thought I had slept wrong on my sisters couch. I woke with numbness to my tight little finger and up my arm into my neck and right side of my head/face. It wasn't really numbness, but more of a feeling of overstimulated skin, or right before a limb "wakes up", before the pins and needles. I noticed a dinner plate size of numbness in the middle of my back like a bulls-eye, and I had transient neurological numbness/tingling/cold/hot sensitivity and such, but only on the right side lateral hand/arm, neck/head and it did NOT cross the mid-line. Since this did not resolve with time as it should have I went to my PCP. He directed me to a neurologist that did a complete neuro workup with blood, imaging, spinal tap which were all negative. So he sent me to a neuro-ophthalmologist because I had slightly irregular pupils. They said they found nothing, that i was a depressed, tired nursing student and suggested an antidepressant. I didn't buy this crap and just managed my symptoms as best I could. On January 26th of 2015 I was awakened by a left sided headache 8/10 that has never subsided. I've been diagnosed with New Daily Persistent Headache (NDPH) with complex migraines, and 3 months after that developed a tonic pupil in the left side and they added a diagnosis of Holmes Adie's syndrome (no pupiliary constriction in the left eye and no lower extremity deep tendon reflexes). Before the headache, I was the night shift supervisor of our hospital, I worked trauma and critical care 12 hour minimum shifts with little more than bathroom breaks and thrived on it. I've had to give that up because I am dangerous as that kind of nurse, I could not tolerate night shift and in 2017 moved to a clinic Monday through Friday 8-430 weekends/holidays off. Fatigue is my main enemy with pain a close second. I have blurry vision so it's hard to use a computer, LED lights are evil, I've lost weight because of nausea and have continual little bruises from running into things related to my balance. I have continual brain fog and I wonder how much longer I can maintain. I have tried every recommended treatment: abortive medications, pain meds, blood pressure meds, spinal taps, blood work, CAT scans/MRI, IV infusions, manual manipulation/massage, meditation, diet changes, alcohol, no alcohol, alternative medicinal therapy, stopping everything, starting over, injecting my body with a drug that is a little over a year out....because why not? It can't get any worse. I have lost so much related to this condition in such a short time, personal and professional, no to mention how it affects those around me. Each day is a struggle, and survival is no way to live.