- CASE FILE
Please help me find an answer for the pain and exhaustion I live with every day. I have tried everything but it is only getting worse.
ABOUT THIS CASE FILE
In 2006, my life changed, but I had no way of knowing how bad it would get. By 2008 it had gotten so unbearable that I was legally disabled under the diagnosis of Fibromyalgia and Chronic Fatigue Syndrome. It had started with back pain that continued to get more severe with time. During my initial visits with my doctor, I found out that I had hypothyroidism. No treatment helped with the pain that gradually worsened and spread throughout my body so that even my arms, legs, and fingers hurt. I tried chiropractic treatment, physical therapy, pain management, and had countless tests, x-rays, MRIs, and blood work. I got injections in my back and other joints to try to alleviate some of the pain. I have been given too many medications to remember them all. None of them have helped. Any relief was always short-lived. I was also diagnosed with sleep apnea and had Uvulopalatopharyngoplasty surgery in an attempt to improve my quality of life in any way. Finally, after several years of tests and visits with every specialist possible, I was diagnosed with Ankylosing Spondylitis. Every medicine that is prescribed for AS, such as Enbrel, has made me feel worse and did not help with the condition. Another oddity is that I do not have HLA-B27, the blood marker that is found in AS patients more than 90% of the time. My spine and joints are not fusing together, which is another commonality for AS patients. Shortly after I was diagnosed with AS, I went to another rheumatoid specialist for a second opinion. He said that he could not confirm the AS, but gave me a diagnosis of Fibromyalgia, which is the first diagnosis I had. I was once told by a different specialist that it is possible that my condition had not even been discovered yet. I have been to neurologists and had MRIs on my brain as well. All these tests have come back as normal. About three or four years ago, I started noticing that my blood work was showing some abnormalities. It was never mentioned much at the doctor visits. The white blood cells were usually high, and there were other levels that were high (platelets and neutrophils) or low (lymphocytes). In the summer of 2017, I got pneumonia. It was peculiar because it was not cold or flu season, but I was not overly concerned. Since then, in the last two years, I have had pneumonia 7 times and had to be hospitalized for it in November of 2018 for a week. My immune system has become too weak to even try most of the medications that are typically used for Ankylosing Spondylitis. I am 52 years old and my quality of life is almost nonexistent. I have been fighting this condition for more than 13 years and I desperately need help before it is too late.