- CASE FILE
Chronic leukocytosis 7 years, petechiae on and off, hypocelluar bone marrow at 30%, low grade fevers 99.9-100.5, low energy, weakness
ABOUT THIS CASE FILE
For 7 years I have had chronic leukocytosis (high white blood count), it started with petechiae-like "rash" on my legs that didn't itch or cause pain. No one in the house had them and I had not traveled anywhere. Attempted biopsy from dermatology but could never get in. Fatigue and fever (low grade) sometimes I would feel fine with a fever and other times it was like I was hit by a truck and couldn't function. Had a total of 3 bone marrow biopsies with the recent 2 within the last year. All bone marrow biopsies show hypocellular bone marrow at 30%. I am a 30 year old female and apparently my marrow should be around 90%. Was told that I could have a myleoproliferative cancer that's biding its time. No one can explain my WBC or my marrow which has been tested 7 years ago and again last year - no change in the marrow, got worse. Within the last year I have unintentionally lost 20 lbs, increasing fatigue and has even had a few episodes of weakness and presyncope. I have been to UCSF and Stanford and have been told that everything is "stable" and maybe I have chronic fatigue or cancer. I feel like something is off. I am an active athletic woman, and something is not right.
Concurrently I have PCOS (polycystic ovarian syndrome) non-diabetic, insulin resistant. Osteoarthritis in knee and back, previous sports injuries to hip and shoulder. I have always live in California, and was once a veterinary technician - even checked with my former boss to see if anyone at the clinic has my symptoms - they don't. I have seen integrative medicine, infectious disease, rheumatology, hematology/oncology. I have been tested and been negative for Lyme disease and valley fever. No depression or mental health problems.
Doctors think I am crazy but I tell you, something is wrong. This all can't be idiopathic. (Thats all I can recall, its been a long 7 year journey)