- CASE FILE
I woke up on December 4th, 2017 & my right ankle was swollen. It has only gotten worse. Color & size changes everyday.
ABOUT THIS CASE FILE
I woke up on December 4th, 2017 and my ankle was swollen. I had been out dancing over the weekend so I didn't think anything of it. Thought I could have twisted it or something not so serious. I let it go for about 4 weeks. The swelling stayed but it didn't really hurt that bad. My mom then mentioned after the 4 weeks that I should go to the doctor. I found a Primary Care Physician ( January 9th) and she started running a bunch of labs (all came back normal) and imaging that showed nothing was broken or fractured. I then found a new PCP (who I still see now) and she referred me to The Northern Illinois Vein Clinic. (February 7th) They ran some ultrasounds on all of the veins in my leg/foot/ankle and said everything was completely normal. After that appointment, I was referred to Rheumatology. She was thinking either Lymphedema or Complex Regional Pain Syndrome. (March 1st) They did an MRI which came back normal. I was referred to the Lymphedema clinic (March 30th) , where the nurse gave me a wrap and a cloth boot and told me to wrap my leg/ankle up really tight and put the boot over it. After the first night of doing this, I woke up the next morning and I had hives. I called my PCP and she prescribed me Prednisone to get rid of them. (April 2nd) After the first day of taking the Prednisone, the swelling and pain was almost gone. I called the Lymphedema clinic and let them know what happened. The nurse said that since my issue responded so well to the Prednisone, that it was definitely not Lymphedema. I then had an EMG done (April 4th) and everything came back normal. I went to the ER at UW Madison, was told that was the only way I could get in. They were not able to tell me anything. After that I had a CT on my abdomen and pelvis that came back normal. (June 6th) A muscle biopsy was then performed that came back with no answer. (once again, everything was normal) (July 17th) I got a Cortisone shot on August 6th that helped tremendously, but still no answers. I was started on Metformin on August 28th due to my diagnosis of Steroid induced Type 2 Diabetes. I then went to a clinic in my home town for Pain Management. (October 31st) They took X-Rays and sent me for MRIs. Still nothing. I went to the infectious disease doctor on December 4th, 2018 and he said it definitely was not an infection. (just by looking at it) I went to the pain clinic at UW Madison on December 19th and they were not able to help me. The pain clinic DID however rule out Complex Regional Pain Syndrome. I went to Mayo Clinic on February 5th - 8th. Our first trip up there was not successful. Every doctor just kind of looked and me and basically said " your a medical mystery". Went back to Mayo Clinic on February 11th for an appointment with the Rheumatologist. From there, she sent me to every specialist she could think of. Had fluid pulled as well that came back normal. I had 2 more biopsies done (soft tissue & skin). This biopsy was ordered by the dermatologist. This is where his "diagnosis" of Polyateritis Nodosa came from. I don't believe this is what I have. I do not believe that a Dermatologist is going to be the one to give me answers, but I could be wrong. He was leaning more towards a skin rash due to the discoloration and it is definitely something inside my body. The Medications he then prescribed were not helping. And the bad outweighed the good. Currently the only medications I am taking is Prednisone - 15mg/day, Metformin - 1000mg/day & Lisiniprol to protect my kidneys. I also take Ibuprofen when needed.
I am not able to wear a full shoe such as a tennis shoe. I have worn socks a handful of times in the last 19 months. The area is discolored as if it is bruised. But that changes everyday as well. It is very painful to live with this every day not having a diagnosis or a treatment plan. It has affected my life in ways such as when going to a sporting event, we have to sit down as low as possible because I can not walk up and down stairs easily. I am not able to wear the shoes I used to wear to attend weddings and parties. My whole attire has to change to accommodate the shoes I can wear. I can not climb a ladder to do simple things such as painting. This is just very frustrating and I am ready to find a cure. I want to put this all behind me and start living life to the fullest, again!