- CASE FILE
Neurological Autoimmune Disease - I have a diagnosis to share that may help others. At time of diagnosis I was only 7th confirmed case.
ABOUT THIS CASE FILE
I am sharing my diagnosis to help others that may be searching for answers. I was very fit racing multiple Triathlons and Running events only to wake up one morning lightheaded. Six weeks later I was unable to walk without using a walker, loss of balance, hand and leg tremors, extreme headaches, vertigo, tunnel vision, temporary blindness, restless legs, etc. All symptoms of various diseases. A brain MRI with contrast revealed hundreds of small unknown ‘abnormalities’ throughout my brain and spinal cord. A Right Temporal Craniotomy and Brain Biopsy revealed an extremely rare (no official name) Neurological Autoimmune Disease. At the time the name used was a simple descriptive term, Chronic Microglial Encephalomyelitis, and I was the 7th confirmed case. Since then another descriptive name has been used, Glial fibrillary acidic protein IgG related myelitis. Treatment has been a very aggressive course of corticosteroids combined with immunosuppressive therapy.