- CASE FILE
I have had hidradenitis suppurativa since I was 11yo. At age 26, i have had i&ds and multiple surgeries.To no avail. Suffering open wounds
ABOUT THIS CASE FILE
Pilonidal disease that on stay closed after 2 resections. Surgeries would numbers in the double digits. Nausea on most days. Treatment courses with doxycycline that did not work. I have been wearing a map of flex Band-Aid on my tailbone for over a year now. My doctor says that they don't wanna do another surgery because the 1st 2 did not work. So now I'm stuck between a rock and a hard place, trying to find a doctor . My primary care doctor is working extremely hard to find a team of specialist to take on my disease. In the meantime my Tail bone keeps opening and closing ,and I'm in pain most days. I also have abscesses O my grain in supra pubic area that no surgeon or gynecologist will go near.