- CASE FILE
Unexplained symptoms of headache, dizziness, right jaw swelling, hearing loss, ear pain and fullness, weakness, high heart rate
ABOUT THIS CASE FILE
Over a year ago I developed right facial swelling along the jaw line, right ear ringing, and right ear pain and fullness. I was diagnosed with viral parotitis. After a month of symptoms continuing, I developed low grade fever and lightheadedness. I was hospitalized for sepsis. In the hospital they stated sepsis was caused by parotitis but CT scans and MRI was clear. The ENT specialist wasn't sure if this was the true diagnosis but went with it. After being discharged my symptoms continued and was prescribed months of oral antibiotics. I then saw an ENT who then stated that my right tonsil was swollen and CT showed some small stones. Stated that I may have had tonsillitis instead of parotitis. I had a tonsillectomy performed a few weeks after. My symptoms still persisted but new ones developed as well such as decrease hearing in my right ear, increase pain in right ear, right facial and arm numbness and tingling, clumsiness, forgetfulness, and the feeling of my mind being cloudy. Saw ENT again, and was told i had partial right hearing loss. We started prednisone which did not help with my symptoms so then i had dexamethasone injections in my ears. The injection did not hurt it was after the injection was place where i had the most pain. ENT then suggested that my symptoms could be a neurological issue since i shouldn't have had pain after the injections. I saw neurology and had a lumbar puncture done. My opening pressure was at 32 when they said at my height and weight my intracranial pressure should be between 18-20. I was then diagnosed with idiopathic intracranial hypertension (IIH), but was told that my symptoms did not fit all in that diagnoses. I was put on multiple medications which did not help. i saw a second opinion neurologist who agreed i had IIH, but was determined to find out why. I had an MRV done which showed i had bilateral transverse sinus stenosis, meaning my cerebral spinal fluid was unable to drain due to the narrowing in the transverse sinus veins. I was the referred to an neurologist interventionist who suggested i get a stent in my transverse sinus. I had the venogram done which showed i qualified for the stent due to the pressure in my head. I then had the stent placed in my right transverse sinus. After the stent placement, all my symptoms had decreased except the constant ringing in my ear. One week post op, i developed chest pressure and shortness of breath. When standing my heart rate would increase to 140 and had difficulty walking. I was diagnosed with postural orthostatic tachycardia syndrome (POTS), but was informed this was the only diagnosis they could come up with but unsure if I actually had POTS. I was off work for months. Used a walker for about a month. After a few months, my symptoms were very minimal but the ear ringing still continued. About two months ago, my symptoms have returned - the intermittent right facial jaw swelling, right facial and arm numbness and tingling, right ear pressure, headache, but now the dizziness has gotten worse to the point that i feel like passing out. My doctors are not sure what else they can do for me and was told that this could be my new norm. I am 35 years old, a mother of two young children, a wife, and a nurse. This has affected my career and I am unable to do my regular day to day routine.