- CASE FILE
49 year old woman misdiagnosed many times since approx age 25 with symptoms mimicking multiple sclerosis. Almost vegetative at this point.
ABOUT THIS CASE FILE
Beginning around age 25 and getting more worse pretty quickly started having leg and hip pain with frequent headaches. over the years extreme difficulty chewing, swallowing to the point of only being able to eat soft foods barely, unable to speak or make sound, abnormal left leg swelling, Pain throughout body that comes and goes daily multiple times a day, started using a walker shortly after. then at around age 38 absolutely needed to use a wheelchair to get around. not long after it became permanent the point was unable to support own body at all, leans in chair to the right side, trouble sleeping at night, cannot walk, talk. unable to control bladder, no muscle control at all. progressing degeneration rapidly.
Had/has blood clots,right foot hammer toe because of muscle cramps, spine is twisting, progressive multifocal leukoencephalopathy (PML), CNS demyelinating disease, Dysphagia, history of/chronic deep venous thrombosis, Lupus anticoagulant positive, osteopenia, spasticity, depression, dysarthria, lower extremety edema, lung nodules, unconscious urinary incontinence, hypothyroid, elevated cholesterol, varicose vein of leg, immobility. constipation due to opioid use pain management although it doesn't help much.
Doctors have said I have multiple sclerosis or something that mimics it then change their mind to too much calcium build up in the brain then went to a study hospital out of town who said I had a rare bacteria in the brain that is eating away on it but left it at that with no way to help.