- CASE FILE
I have a rare disease. Stiff person syndrome. It is often miss diagnosed or never found. I am willing to do anything requested of me
ABOUT THIS CASE FILE
My muscles contract to the point that I have muscle spasms. The nerves go dead and I lose sensation and the ability to use my limbs, digits included. It has gotten so bad that I have had one hand go dead to the point that I could not move my hand. The doctors would move the digits when I could not. Typing is difficult, sometimes I have to set my phone down and put it on speaker to talk because I can not hold my phone in my hands. When this hit me I lost my job and housing. I wound up on the streets of San Diego, eventually, I made it into a homeless shelter. Until I made it into a homeless shelter. My reality was that I would sleep with my wheelchair against buildings and hope that someone did not take it during the night while I was asleep. Currently, I am on disability so because I do not have good insurance. The system doesn't care enough about me to look into making me functional. I am currently trying to transfer to a better clinic. My doctors have all been students. With the treatment that I received. I went from wheelchair-bound homeless and in constant pain to able to feel the ground and eventually I am able to stand and walk short distances. This is a story and mostly a cry for help. Nobody cares about me, I have no hope.