Hi everyone,
my name is Rori and I'm 51 years old. My story started about 6 years ago. I was a 1st grade teacher and was busy raising 2 kids with a wonderful husband. I was so happy and had everything going for me. That all changed in December of 2013 when I began having difficulty getting up from the rug in my classroom. I fell at work a few times but thought I was just distracted. My balance eventually got so bad, I had to use a walker. About 8 months later I began to notice changes in my voice. I was having difficulty getting words out. My voice became so bad that my students could no longer understand me, and in November 2014 I had to stop teaching. I was devastated. As of today, I can no longer walk or talk. I cant even sit up on my own. I'm virtually trapped in a body that is seizing to move!
I can no longer speak at all! I can only communicate through text.
I have seen numerous medical doctors, neurologists, infectious disease doctors, functional chiropractors, biological dentists, osteopathic doctors, functional medicine doctors, naturopaths, homeopathic doctors and specialists in skeletal and muscular diseases etc. Doctors and specialists have told me I have primary progressive MS, stiff persons disease, mercury poisoning, lyme disease, HSP, PLS, but all the tests inevitably come back negative. No doctor can agree on what I have and no treatment has worked..
I feel like I'm failing my family, and everything around me is falling apart. I don't know what to do at this point, but i'm not ready to give up!! I desperately need answers, and would appreciate help or ideas from all Thank you ?.