- CASE FILE
I have a host of autoimmune disease processes and symptoms that don’t fall under one autoimmune disease, such as lupus, or RA, etc.
ABOUT THIS CASE FILE
I have been told by at least 2 different doctors”You have a different sears medical science hasn’t caught up with yet.” I have Cold agglutinin disease, fibromyalgia, psoriasis, autoimmune hearing loss, undifferentiated connective tissue disease, extreme fatigue, constant pain, difficulty sleeping . I have to seen specialists and duke, Vanderbilt University Hospital, Johns Hopkins, and Cleveland clinic and still have no answers. All of my autoimmune disease processes and symptoms do not fall under one blanket autoimmune disease. Therefore, no one knows how to treat the disease . I was an audiologist and can no longer work, due to my illness. My pain is so severe that I have to take pain medication in order to function. I have flayers of the disease that leaves me unable to do the smallest tasks, due to severe fatigue and pain. My cold agglutinin disease is always active and my body is attacking my red blood cells and killing them. So far, my body has been over producing red blood cells to fight the disease. I don’t know how long my body will continue to do this. I fight daily just to be able to live with the pain and fatigue. I’ve often told my husband, that I’ll go to bed tonight and not know what new symptom I will face in the morning