- CASE FILE
Constant severe face, eye, head, and neck pain for 8 yrs Not migraine Double vision Feels like an ice pick in my eye and eyelid twitches
ABOUT THIS CASE FILE
I had a brain tumor on my pituitary gland and the gland removed in 2008. I had a CSF leak I was sent home with from the hospital. CSF was coming out of my nose for over a week and every time I moved my brain hit my skull. I was flat on my back for over 2 weeks. I almost died before they did a repair surgery. My brain was swollen and bruised and I didn't know my family but was talking to a man in the corner I was seeing while hallucinating. I don't remember those 3 days. I thought the headaches would go away but got the opposite result. Each yr missing more work until 3/6/11. I was in the middle of my shift and got the sudden thunderclap headache. I was a CNA so I couldn't just leave work. I had the nurse check my vitals and the other CNA basically had to help me do everything. I couldn't see to chart in the computer or initial the therapy book. I couldn't transfer any patients to bed because I was dizzy, vomiting and couldn't walk straight. I had blurry or double vision, ringing and poping ears and couldn't find the words to form a sentence or slurred. I was sensitive to light and sound and it looked like the steps at work were moving when I was trying to walk down them. That was my last day to work. It never stopped. I'm now 43 disabled and have the same pain and symptoms. Every yr gets worse. I stopped calling my issue a constant 24/7 headache because every neurologist says migraine or daily headaches and it's much worse than that. I do get basilar migraines when it rains or I eat the wrong food. I can't take Triptans because they are basilar. I've seen over 10 neurologists. Many of them don't do any tests and just say they don't know what's wrong with me or give me a new med to try. I've tried them all and they don't work on me because they are for migraine. I've tried allergy testing, accupuncture, Botox, medial branch blocks and occipital nerve block and hemp oil. None of it helped. When a physical therapist put my neck in traction it cut the pain in half until he let me go. The last neurologist put me on Diamox for left eyelid twitching and the feeling of an ice pick in my eyeball constantly and told me this how you're gonna be for the rest of your life so you just need to accept that. I can't. He never even touched me or asked me to stand up for an exam. He is 3 hrs away and said no tests or procedure will help you so you have to get someone local to precribe the Diamox or come here once a yr. I'm looking for someone local. My family Dr said Diamox is for increased intracranial pressure and it has to be tested and monitored.It has never been tested. The pain is excruciating and I sleep as much as possible to not feel it. I keep my house dark with blacked out windows and use night lights at night. I can't stand the sun. My opthamologist said my eyes are ok. Pain Drs say they don't think they can help me or treat me like I'm making it up to get pain meds. I have been diagnosed with degenerative disc disease and 2 bulging discs also cerrvico-occipital neuralgia and fibromyalgia, stiff joints and muscles, and numbness or weakness in my hands and legs. I have foreign material and packing, bone graft, and belly fat in my head down into my sphenoid sinuses that can't be removed so my sinuses can't drain, My White blood cells are always high for unkown reasons and no pituitary gland causes many health issues. I feel my neck is involved but don't know if it's high pressure or nerves damaged or pinched. I live in a small town and the Drs don't want to listen to me about my neck or do any tests. I've had more MRIs than I can count and they all say I have a sinus infection because they can't drain and high WBC with post surgical changes and packing from brain surgery. PLEASE HELP!!!!