- CASE FILE
I was diagnosed with carcinoid/neuroendocrine tumor. This is a rare cancer. I was unwell for about 5 years before correctly diagnosed.
ABOUT THIS CASE FILE
I've been diagnosed with neuroendocrine tumor/carcinoid: a rare cancer. It took about 5 years of searching before we had a correct diagnosis. I'd like to be able to help others understand the symptoms and how to get connected to providers that know what to look for and start the treatment process. I had chronic diarrhea for years and an enlarged liver. There was also chronic vomitting, abdominal pain and symptoms similiar to acid reflux. I underwent several diagnostic tests and was misdiagnosed for years, not due to the medical providers or my lack of follow up, but rather because this is a rare cancer and unless one know what to look for, it is easy to misdiagnose the disease. I am happy to share my story in hopes that it can help one person get a correct diagnosis and start treatment