- CASE FILE
35 years of feeling ill, chronic muscle stiffness and spasms in neck and shoulders. Have antiphospholipid but no one can find out what else.
ABOUT THIS CASE FILE
I've been sick for 35 years. Diagnosed with cystic fibrosis at Age 3, undiagnosed at age 16. I have never felt good. I started having muscle pain , stiffness, spasms in my neck, shoulders and upper back in 2008 and has been ongoing since . When I was pregnant with my second child in 2015 the muscle pain subsided tremendously . It eventually came back with a vengeance . I have seen lots of doctors a rheumatologist a hematologist, tried many medications for pain, anxiety, physical therapy, Botox injections along with trigger point injections. Any type of exercise makes my muscles flare up. I was recently diagnosed with antiphospholipid syndrome due to random blood clots. Doctors say could be an autoimmune disorder but no one can find out exactly what. My mom is suffering from the same thing along with two of my aunts.