- CASE FILE
Beta Cell Hyperplasia and adult intussusception have made life very difficult over the past few years.
ABOUT THIS CASE FILE
I was diagnosed with a rare condition called Beta Cell Hyperplasia it is the opposite of diabetes a few years ago. When I eat my blood sugar drops to extremely dangerous low levels within 20-30 minutes after any meal. I wear a DexCom monitor to alert me whenever my levels start to drop so I can treat my symptoms as the occur. I am missing an enzyme that you have that tells the pancreas to stop producing insulin therefore I continue to produce insulin until I pass out if I don’t treat myself quickly. The past year I’ve had several abdominal surgeries all Ex-Laps and done without opening me up completely. My intestines have started to intermittently fold within themselves a condition called intussusception which usually only occurs in small children. I’ve had it happen twice and am still dealing with being unable to eat without vomiting. So if you tie the two conditions together you can see the conundrum I face. I need to eat for one issue and can’t eat due to the other. I have no cure nor definitive treatment for the Beta Cell Hyperplasia. I’ve attempted eating differently tried putting myself into ketosis to regulate my blood sugar all to no avail. My body seems to be fighting me and although this may not be the most interesting case as all of my issues are internal I can tell you that this is exhausting. My reality is one morning I won’t wake up because my lowest drops are nocturnal and up until getting my DexCom back I hadn’t slept peacefully in over a year. Now with it I’m still not sleeping due to the alarms alerting me to wake up. I’ve done a lot of research on possible fixes for the BCH but all of the research I’ve found seems to be done on cadavers and no one alive. I would love to see if there are more people who have had either of these issues and how they were treated. At this time my endocrine system is holding me hostage in my own body. I can’t get too excited, make love to my husband, get too upset or emotional as I experience dramatic drops whenever I feel too much of anything. Due to having to eat sweets almost all the time I’m experiencing a lot of dental issues and being an active person not being able to do too much is depressing. I would love to be able to live a somewhat more normal life and actually live without the fear of dying soon. I could go on and on about the year of abdominal surgeries and procedures which have had me under general anesthesia six times within such a short period of time. If you are a medical professional you know how dangerous it is to go under more than twice in a year. I’m still experiencing a lot of abdominal issues and have given up on trying to fix my intestines twisting due to the fact I am tired of being operated on right now. I am living life as best as I can and to the naked eye appearing as though nothing is wrong as my career is flourishing and I just don’t want to keep putting my family through all of the emotional ups and downs. In essence I am currently suffering silently but I am truly reaching out for help. Thank you for listening to my story.