- CASE FILE
Since I was a child I have been a medical mystery. My doctors nurses have told me to stop playing stump the doctor.
ABOUT THIS CASE FILE
Why are you seeking help?
Where do you feel pain or discomfort?
How have your medical issues impacted your life?
Have you seen any medical professionals and what did they say? I have seen the best of the best Mayo Clinic. They say some things are indeterminate. I have random symptoms that fit some things but not others to confirm my diagnosis. I have lung nodules that aren’t normal that shouldn’t come and go in the fashion they do
Have you taken any medicine?
I have to take medicine for my pain, joint swelling, heart rate and of course Benadryl because they just aren’t quite sure so that solves it all
Have you engaged in any treatments or procedures? I did ivig but wait those side effects but the Richter scale of bad so moved to subq that isn’t supposed to have as bad as side effects. He wait now I have a rash they aren’t quite so sure what it is so put some hydrocortisone on it because it will help it go away. Nope its making it worse. I went through allergy shots as a child, lung function tests which are great and don’t go hand in hand with nodules that wax and wain.
Overall I just want to plan for the good and bad days and have a reason for it. I don’t want blood tests greats one day and then drop the next. I’m tired of being put in well you might have this but all symptoms just don’t quite fit. It’s tough advocating and speaking for yourself when nobody not even the best doctors aren’t quite sure what or why I get reactions in the way I do. You should see the most recent rash photos from weeks later... I have had licen planus but not related to hepc. I have gained weight lost weight now at the the normal weight range so the doctors can’t say it’s my weight. I’m borderline for most things and they just can’t fit me in one category or the other.