- CASE FILE
27 y/o with chronic symptoms for 10 years; visited many specialists and had abnormal findings but no definitive diagnosis.
ABOUT THIS CASE FILE
I've had my symptoms for 10 years now that are constant. My main concern is my dizziness/lightheadedness. I have it 24/7 and can't remember not feeling this way. I am not spinning, but feel very off-balance however I do not fall over. If I am in the car for more than an hour, in a loud crowded place, or exercise it gets much worse and I become very nauseous. For this I've had a brain MRI, VNG, tilt table, holter monitor, EP mapping of my heart, and EKG. VNG showed some vestibular hypo function but I have tried vestibular therapy with no improvement and my MD thinks surgery is not necessary. Another symptom is I feel as though there is a build up of pressure on the right side of my face and in my neck. My lymph nodes are not swollen, I've had a Carotid doppler, brain MRI, ENT evaluation, all normal. I experience a "draining" feeling occasionally that I can only describe as feeling like all the blood is rushing towards the ground while I'm standing and I feel as though I'm going to pass out, but never have. For the first few years it did not impact my life much, but as I get older it gets more debilitating. I've seen just about every western medicine specialist and had every test done and was scheduled to go to Mayo clinic, but after talking with them they told me they weren't sure what else they could do for me. I've even sought out help from naturopathic doctors, chiropractors, and therapists. After having so much testing done there have been abnormal findings, but no definitive diagnosis and no treatment. I've tried beta blockers, anxiety medication, altering my diet, taking supplements, gaining weight, working out differently, and increasing hydration. Doctors are stumped and my naturopath diagnosed me with POTS (Postural Orthostatic Tachycardia Syndrome) but isn't able to decrease my symptoms. I've tried all suggested treatment for POTS and have had no relief. I'm not convinced that POTS is all that is happening and am currently unsure of what my next steps should be. As of late my symptoms have been so debilitating that I am unable to work or leave the house for daily activities. I am very frustrated as we are trying to start a family and would love to be healthy enough to not have to worry about how I'm feeling every day and if I can take care of a baby. I would love to get back to work and going out to dinner with friends and just feeling like a normal, healthy person!