- CASE FILE
I have bouts of severe chronic pain, extreme weakness, slowed motor and cognitive function, confusion, and trouble speaking. Noone knows why
ABOUT THIS CASE FILE
In approximately August of 2015 I became very ill. I suddenly couldn't hold my own body weight, couldn't hold down food, couldn't hold my own urine, and had trouble maintaining consciousness. My movements became exaggerated and slowed. My speech patterns changed to small simple words and became laborious and forced. I suddenly couldn't remember simple things and felt like a mentally handicapped child. There was pain all over my body, to the point of tears at times, as if I were being punched and stabbed or crushed, and my limbs felt very heavy. This lasted for nearly a year with little relief. The doctors couldn't give me any answers. Their best guess was migraines and depression. That of course went nowhere and I was still sick. After about 8 or 9 months I slowly regained some control and abilities but continued to have episodes where I was symptomatic for days to weeks on end. It has been four years since I first became ill. I am symptomatic on a regular basis with weeks of little to no symptoms followed by a few weeks of symptoms that come and go often over the course of each day. My blood tests, neurologic tests, EMGs and brain MRI's show nothing to be apparantly abnormal. I had suspected MS or ALS because I swear I can remember sporadic bouts of fatigue, malaise, and confusion that I had attributed to depression. We only saw a doctor when we were injured in my family but depression still had never felt like it quite fit the symptoms. Neither antidepressants nor bipolar medications ever had any effect on the symptoms, so it makes more sense that my fatigue and malaise and my fugue like states were related to my current ailments. That being said, nothing was ever as bad as it became in 2015 and on to the present day. There are times where I look like Steven Hawking because the spasticity of my body and limbs causes me to contort and sort of shake in that position. My jaw becomes slack and I can't hold my head up while my hands curl up and bend under my arms which draw up tight to my chest It truly is terrifying and reminiscent of a stroke the way my face seems to melt and there is this strange sensation like a squeezing and the vibration of electricity that accompanies these episodes of spasticity. I become unable to stand still, stand up for more than mere seconds or walk during this time. I have also lost vision completely and convulsed on several occasions but usually just get tunnel vision where I can see blackness closing in around my field of view. I have these involuntary twitches and occasional loss of muscle control now that I can't explain. During all of this I am completely exhausted, no matter how much sleep I get, so I fall asleep or blackout almost instantly and often, and can't seem to wake, up even with repetitive physical shaking and verbal cues from my husband. I seem to have an increased instance of nightmares and panic attacks that accompany my confusion and poor mental acuity and a general feeling of anxiety and unrest. Also, my body becomes tender to touch, and speaking or raising my voice is painful and takes considerable effort that I just can't muster. I am lost and afraid that things are becoming more and more permanent. This seems to be a degenerative condition that is only going to get worse. I need help. Please.