- CASE FILE
I've been suffering with an illness for a few years. This year it has gotten extremely worse. I've had testing and no one can figure it out.
ABOUT THIS CASE FILE
I started feeling unwell in 2016. I would get dizzy and sick and tired easy.I get muscle spasms, a strange heat feeling that will run through my whole body then make my entire body hurt, tingling, buzzing in my ears, light headed, heart palpitations etc. It progressed gradually over the years. I have had nutcracker syndrome, CIDP, POTS, Endometrisis, PCS, adenomyosis. I've had my appendix and galbladder removed. I've had an umbilical hernia repair and surgery for the nutcracker and pcs. I have random scarring on My right kidney and have had blood in My urine at times. My legs will randomly get weak and my hands. This last year I was diagnosed with carpel tunnel and nerve damage in my hands. But my spinal tap last year showed it's not the cidp. I've been on steroids the last year off and on. They're the only thing helping me feel better at this point. I've seen rheumatologist, allergist, Neuro, and my pcp. No one can figure this out. We've done tests for Ana, rheumatoid factor, celiac, thyroid, Lyme, mris for ms. All normal. This has impacted my day to day life by causing anxiety, and just decreasing my ability to do things like care for my children or work. I've been blown off and told it's nothing so many times. I am desperate for help. I have a six year old boy and a new baby girl that need Thier mommy better. Thank you anyone that reads this and tries to help!