- CASE FILE
Complex Regional Pain Syndrome is my worst diagnosis, out of the dozen or so I have. It is widely unknown about, by most doctors and special
ABOUT THIS CASE FILE
CRPS, also known as RSD, lacks so much awareness that most CRPS patients know more about the disease than there doctors do. I live in a very rural area and finding a doctor who has any knowledge of this disease, let alone enough to treat me, is impossible. From what I am learning, the longer I go without treatment, the more irreversible damage is being done to my body. To make a really long story short, I was treated at the local BSU back in February because I was just sick of living this life of pain and feeling like no one was listening to me. I do not want to be on pain medications for long term, and have expressed that from the beginning of my injury. Unfortunately though, I have been waiting for over a year for a spinal cord stimulator. That has left me with no choice but to take the medications. I want to know why my disease is such a horrible disease, yet literally NO ONE knows about it? How can I trust these doctors to treat me effectively, if they don't even know the general protocol, for handling a CRPS patient during a surgical procedure? My permanent spinal cord stimulator surgery is supposed to be on August 23rd, I invite you to come along with me, while I ask my doctor's, I will be working with, about my procedure and also what they know about my disease.