- CASE FILE
Hidradenitis suppurativa (HS) is a chronic inflammatory condition characterized by recurrent swollen, deep, and painful abscesses. NO CURE.
ABOUT THIS CASE FILE
Hidradenitis suppurativa (HS) is a chronic inflammatory skin condition characterized by recurrent bouts of deep, swollen, painful abscesses, on body areas characterized by apocrine sweat glands abundance. Involved areas most commonly include axillae, groin, perineum, buttocks, and the inframamillary regions in women. Frequently, the disease presents bilaterally with one site being more affected than the other. Initial symptoms include pain, decreased mobility of the involved areas, strictures, and malodorous drainage. There is no cure for HS. Most treatments don’t even work. I have tried multiple antibiotics, creams, diet changes, etc. I refuse to do more severe treatments such as skin grafting because too many people get infections and die from doing that, and the ones that don’t die end up still getting them. I’m afraid nothing works for this horrible disease. Sometimes I can barely walk because the boils are so big. I’ve had boils the size of a golf ball. And when they burst there is a putrid smell and a lot of blood and puss. Then you get deep holes and tunnels under your skin that leaves horrible scars and sometimes numbness and the abscesses continue to fill those holes and tunnels back up. Not many doctors even know about HS and those that do don’t know what to do to treat it because there is nothing that works. There’s a pill that helps people with HIV. I’m hoping that this disease can eventually be treated successfully as well. Please help find a cure! Us HS sufferers have gone under the radar for far too long. Our disease is serious and we need help!