- CASE FILE
I have had over 80 surgeries stemming from a childhood birth defect known as Peri-rectal and Anal Fistulas and the attempts to correct it.
ABOUT THIS CASE FILE
I was born with an Anal Fistula and subsequently had 52 surgeries from 5 months to 5 years in an attempt to correct it. This including the addition of two Colostomy Pouches during the surgical duration, which were reversed at 5 years old. I lived with incontinence after but had somewhat a normal life. At 25 I had a fall at work and my bottom swole to about the size of a beach ball. Luckily we were living in Baltimore and close to John's Hopkins where a colorectal surgeon added another ileostomy in the hopes it would solve my problem. Apparently I've had so many fistulotomy procedures that I have, what was described to me as, a roadmap of tunnels that continue to become infected and form an abscess on my bottom. Its happened now roughly 20-30 times. When they do I travel to the emergency room where they incised with local anasthetic. I continue to hear word of a colectomy procedure being needed but, in all honesty, I am afraid of having another major surgery performed especially after I was told that an Ostomy would fix my problems. I suffer daily with pain from both my bottom as well as abdominally from my ostomy and the underlying hernia my surgeon refuses to fix. If anyone has experienced this or knows someone who does I would be eternally grateful for any advice that could be shared.