- CASE FILE
Exposed to moderate levels of sewer gas & 2+ weekly raw sewage back ups 5 days/wk for 3 yrs @ work.Got Coksackie Virus b1-3 + Chronic issues
ABOUT THIS CASE FILE
I have had an arduos journey the last 11 1/2 years in regards to my health. I had a toxic exposure at a restaurant I worked at for 3 years. The exposure was to sewer gas- (that rotten egg smell) and there was also multiple raw sewage back-ups weekly which exposes you to viruses, bacteria, fungus, parasites etc. The gas destroys your mitochondria which means cellular death, it causes brain damage, lung damage and can kill you in high enough doses.
I had to have 3 major surgeries because of the exposure, brain surgery, heart surgery known as cardiac ablation and I had my breast implants removed to make sure my body didnt have anything foreign in it. I had the first set of implants for 4 years from 1997-2001 and the second set from 2001-2014 for 14 years so 18 years total.
In May of 2016 I was diagnosed with many nervous system disorders from a chronic viral infection I picked up from the exposure to raw sewage . Ive had 3 others doctors suggest I may have MS as far back as January of 2014 but it turned out to be dysfunction across my entire nervous system. I have had many viruses and bacteria found from different tests that were run over the years. It was the Coxsackie B virus,and I have strains B1-3, that attaches to your nerve roots and attacks and destroys them, this caused such rampant inflammation in my body that eventually I developed demyelination/dis-regulation of my entire nervous system:CNS, ANS, sympathetic and parasympathetic.
I had brain surgery March of 2014 to remove a large cystic pituitary tumor which was a really hard, painful surgery to go through, especially with the complications I had. I was told that the tumor was likely there from an early age but it never caused me any problems until I got sick from my job. So my doctors are saying due to the high level of inflammation in my body that it caused it to grow rapidly and started causing a chronic headache that lasted for 3 months straight, and for me to start losing my peripheral vision. They said it likely would have never caused me any problems had I not worked there since I was asymptomatic for 35 years.
I also flew to Atlanta, GA Jan of 2015 to have my breast implants removed and have a full capsulectomy done. They might not have caused me any problems on their own but the exposure caused a whole cascade of problems and auto immune issues so I needed to remove any foreign objects from my body that my dysfunctional/low immune system could attack. During that surgery I had to have 7 black enlarged lymph nodes removed, and because of the toxic exposure causing hormone imbalance I developed fibro cystic breasts. I had to have some of the cysts removed too, one cultured enterrococus which they put me on a PICC line of IV Vancomycin for for 3 months but I dont think the bacteria was causing any problems in my body because they antibiotics didnt fix anything. This surgery was one of the hardest to recover from, I wasnt me, I felt like I was going crazy because I had so many central and autonomic nervous system problems. (CNS and ANS) I was having an extreme increase in the auditory and visual illusions, tons of pain and pain and fatigue. My nervous system was so sensitive and on the edge that I couldn't handle people sweeping, or trees moving, or shadows. Everything set me off and I turned sounds and sights into things that they werent. I came to learn in 2016 that this was sensory processing disorder and possibly Mast Cell Activation Syndrome, but I had had it since 2013 but it got really really bad after that surgery. For example, I was walking through a strip mall parking lot with my best friend and she looked to cross the road in the parking lot and I followed assuming it was clear if she was going. Then I heard a train coming at me and stopped and flinched in the middle of the road even though I knew there was no train tracks there. I looked and it was someone on a skateboard but as soon as I turned away I thought it was a train again. This would happen with things i would see also, they would morph into things that they werent.
Ever since i had brain surgery I had started to isolate myself more, losing self confidence, and not feeling comfortable being around people at all. So there were months at a time where I was in bed most of the time other than doctors appointments and errands. These were the darkest times of my life, these were the times that I was in so much pain and so exhausted that I wanted nothing more for it all to end. I did not want to live another day suffering like this. I fantasized about killing myself all the time. I would have some good pockets from time to time but from March 2014 until July 2016 ending my life became a more and more desirable option for me because I was miserable.
In Nov of 2015 I had heart surgery, known as cardiac ablation, where they were trying to stop these arrythmias I was having. They spiked my heart rate up to 214 beats per minute and were making me pass out. If they didnt make me pass out they caused chest pain, shortness of breath, and anxiety. For the surgery they go in with 6 wires and find the spot in your heart thats mis-firing and they burn it to destroy the heart tissue. Surgery was a success but I still have other heart problems that surgery couldn't address such as: Postural Orthostatic Tachychardia(POT syndrome) and Premature Ventricular Contractions(PVC's) which happen a lot and are very unpleasant. POT syndrome and PVC's cause chest pain, shortness of breath, low blood pressure, high pulse rate, tremors, palpitations and anxiety. Same as with the arrythmias but at least now I only have 2 things causing those symptoms instead of 3.
(I now know the following is from having the nervous system disorders from the virus and some from sensory processing disorder and MCAS even though I wrote this years ago):
The newest medical findings are that I have multiple degenerative nerve diseases; small and large fiber demylinating neuropathy and autonomic neuropathy. Its debilitating really because my nerves are demylinating and it causes me excruciating pain, loss of muscle strength, coordination, sensation etc, and the nerves that control my heart, eyes, digestion, bladder and veins are also affected causing me problems with all those areas of my body because I was diagnosed with autonomic neuropathy from a nerve biopsy that showed decreased sweat gland nerve fibers and decreased small fiber nerves. Ive also had other tests to confirm autonimic neuropathy like the tilt table test the showed POT syndrome. I have a lot of neurological problems, visual problems and my doctors think I could be having visual seizures but we havent been able to confirm it with any testing yet so maybe not.
I have been having auditory and visual illusions(not psychological, its from brain damage or sensory processing disorder or MCAS-who knows) for over 3 and a half years now.I have blurry and double vision and I cant process what I'm seeing because my visual cortex is "severely" damaged according to my doctors. I cant be out in public without wanting to freak out sometimes because of the sensory sensitivity. All the sensory (visual/auditory/smell)stimulation is multiplied by 20 in my head because I have developed a severe sensory sensitivity and these are the things that trigger my CNS and ANS to overreact like a "fight or flight" response from the Amygdala. Im having essential tremors. I have "severe" damage to my precuneius which rules the frontal lobes of your brain and is responsible for executive function,and there are 13 other "broadmann" areas of the brain where I have signifigant damage which was diagnosed off of a QEEG and Ive had sevral other types of testing done to test my brain function.
I was having trouble with the doctors at USC figuring out how to help me get better, they were able to make tons of diagnosis but not help me improve, so I felt I needed to step outside of that hospital and seek care elsewhere, but the doctors who are helping me dont accept insurance because they are integrative, naturopaths and functional medicine. I honestly have healed myself more than the 100+ doctors Ive seen but I still struggle to get through each day.
After all the testing one of my neurologists did over a year ago, balance, sensation, coordination, EMG's, EEG, MRI, CT-A.... he found that I had the cystic brain tumor, calcification of the carotid arteries in my brain, abnormal labs and a degenerative nerve disease : mixed axonal and demyelinating sensorimotor polyneuropathy. "mixed" meaning both because one destroys the axon and the other destroys the myelin. Sensory meaning skin and motor meaning muscles, and poly meaning multiple, and neuropathy just has to do with a malfunctioning of your central nervous system. This ALL makes sense now when I link up all the symptoms I have been having since the beginning of 2009 and how they have progressed and lately I have been deteriorating on a much quicker level. I am also noticing that even though I force myself to exercise to and stay/eat healthy, I dont really build much muscular tone or strength and what I do its VERY hard to hold onto. If I stop exercising for a short period of time because of an injury or because I dont feel well I lose it FAST. Plus EVERY time I exercise( even if its light exercise) or am exposed to too much sensory input or chemical smells, synthetic fragrances etc I have a flare up and can gain anywhere from 5-9 lbs a day in inflammation and water weight. I get very puffy and swollen and all my symptoms increase.
I have a challeneged liver because my MTHFR C677T gene has a double mutation(homozygous) which means a part of my liver, the part that detoxes, can only work at 10-15%. This is part of the reason why Im so sick because that part of my liver thats impaired produces enzymes that regenerate your mitochondria. The H2S gas kills your mitochondria and since I cant regenerate them efficiently thats why I have been having such a hard time with this. Also I have a lot of other Methylation and COMT gene mutations that affect my neuro and detox pathways which is another reason I have so many neurological issues after the toxic exposure.
I had some minor digestive issues before I worked there labeled IBS, but it got WAY worse after the exposure. I have been diagnosed with leaky gut, over 69 food sensitivites, Im bloated all the time, I dont digest my food well so I have tons of nutrient deficeincies. Im anemic alot, low on potassium, Im hardly producing any amino acids or neuro transmitters, Im severely low on Vitamin C, on lithium etc. Ive had SIBO, parasites, bacterial over growth etc that Ive gotten under control. My microbiome is depleated. Ive been diagnosed with bladder pain syndrome, Pelvic Floor Muscle Dysfunction, Vulvodynia, Hashimotos which I seem to have put in remission and now its just hypothyroid. Ive grown large 3" ovarian cysts, I have small uterine fibroids, I have a small cyst on my thyroid gland. I have Osteopenia at age 41, Ive got a lot of hormonal imbalance, low testosterone, low cortisol in the am and pm ok in the day, way too high on progesterone, and estrogen that spike high day 3-7 of my period. My periods have been becoming abnormal and its likely because the cystic tumor is growing back in my brain, found out july of 2018, and its growing inside my Pituitary Gland. Ive been diagnosed with Peripheral Vesibuleopathy, Adrenal Insufficiency, I showed positive in 2014 for 2 bands on a Lyme test but it wasnt a positive CDC diagnosis but a doctor put me on a natural treatment plan for it anyways. i just had another Lyme test July of 2019 and showed 5 bands positive, Ive showed a positive test for Lupus that was retested and negative. Ive tested positive for Cytomegalovirus, Herpes Virus 6, Variciella Zoster Virus even though Ive never had Chicken Pox, and positive for Epstein Barr Virus from getting mono when I was 15.
I was getting chronic vaginal infections including yeast, bacterial and cytolytic vaginosis, that lasted years on end but I seem to have gotten that under control better> I was diagnosed with Systemic Candida, and Heavy Metal toxicity which I did much natural detoxing for and Chelation. Ive had green mucus coming from this inflammed spot of tissue in my nasal pharynx for 6 years now, it was biopsied and came back normal, just bloody and inflammed and covered with heavy Staph bacteria. I break out in skin rashes all over and quite a bit, I have Osteoarthritis, an nonunion fracture in my right ankle, bulging discs in my neck, spinal stenosis and a reverse lordotic curve. Honestly the list goes on and on and theres been so much I cant remember it all, especially with having brain damage.