- CASE FILE
I have been ill with a mustery illness for over 13 years. I am 33 years old now. I was an athlete and personal trainer prior to first sympto
ABOUT THIS CASE FILE
It began 13 years ago. At work the room began spinning. Prior to that I had to go to the ER for abnormal heart rhythm and chest pain. They couldn't find the cause. I was an athlete and FT college student. It got worse. Within a matter of weeks, I couldn't walk straight. Walking down the University hallways the floor would shift beneath me. I would feel like I was walking on a conveyor belt. I had to hold on to the walls to get me to to walk without stumbling or falling. The text books words would float and wiggle and I coulsnt focus my eyes. I would get intense head pressure. Like my brain was swelling. I began tp shake with tremors and feel flushed. My skin would get bright red and hot. The dizziness and feeling like I would black out intensified. I became exercise intolerant. The slightest bit of exercise would make me pass out from dizziness and intense head pressure. I thought I had a stroke. Or a tumor. I went to the ER countless times. All tests always returned normal. I was told it was anxiety. Over and over again.
I knew it was not anxiety. I couldn't drive. Driving triggered feelings of being on a boat or swaying and dizziness. I had to pull over alot. The vertigo became a daily occurrence. Eventually, I had to quit being an athlete and my job of personal training. I had to be granted forbearance for my university work over and over again.
Years I suffered. Convinced I would drop dead any day. The symptoms grew more intense along with neck and spine pain. No real answers came my way. Rapid weight gain followed.
Finally. Into my 30s I started getting small clues, but still no conclusive answer. MRI finally began showing lesions and prematurely aging brain. My cardiologist found I developed SVT (supra ventricular tachycardia). I am Bromberg syndrome positive. I have a severe migraine disorder. But it didnt explain the tremors. The constant feeling of needing to black out. Fainting. Deep and intense fatigue that scares me. Heart rythm issues that come and go.
My entire life has passed me by and I am no clpser to real answers. I spent my entire youth mostly sick and in bed. Incapable of pursuing my career. I prepared for my funeral instead. There was no way I wasn't dying. Now, I jad a neurologist tell me maybe ots early onset multiple sclerosis, but I dont fit the classic case of it either and spinal tap came up clean.
I often battle intense fatigue, dizziness and feeling faint. Shortness of breath but getting oxygen. Heat intolerance. Tremors of hands and legs. Hypokalemia. Balance and coordination issues and bad memory and speech problems. Slight cognitive decline as well.