- CASE FILE
Unknown muscle pain, swelling,muscle knots, hot shooting pain w/needles in legs. Hard rubbery substances on top of muscles, swollen armpit
ABOUT THIS CASE FILE
My issues began late March 2016 due to a horrific and uncertain injury to the right-side of my back, in the Rhomboid area. It feels like a knot (approximately 7.5 inches by 1.5 inches) and continues to extend under the right scapula. As a result of the injury, I then developed approximately thirteen knots in my left upper back (currently I have three knots on each side of my back, with the original injury/knot protruding my back like a knob). Following that, my right hip felt as if it was broken. Due to the expanding effects, I could barely utilize my right leg because of the pain. Not too long thereafter, I had the very same feeling in my left hip and could hardly walk at all. The pain in the hips has become so severe, it has created shooting pain from the front of the hips downward to the knees; front of the leg, plus inner and outer thighs, pain that feels like an electrical charge. The most recent symptom which occurred this past December at which time I had a visit to our local Urgent Care was due to swelling, pain, and tenderness in both left and right armpits, in the lymph node area. This swelling is approximately the size of a human fist. I had two separate ultra-sounds which showed a mass in my left armpit. These we're done at our local ER and also the Breast Center. I also had an MRI which had negative results. This has caused great confusion as my physician relied only on the MRI and not the TWO prior ultrasounds. As a result, treatment or diagnosis has not been forthcoming. The pain in my armpits has been persistent, just like all the other affected areas. This particular situation has caused inflammation, extreme pain, and tenderness which projects into my entire left rib cage. There are also rubbery substances forming under my skin which can be described as semi-rigid ripples and bumps which are perpendicular to the direction of the muscles. These are increasing in both length and breadth and are causing an ever increasing amount of pain. This is so very disconcerting as it inhibits my ability to get any amount of restful sleep and any movement intensifies the discomfort. There is also a feeling of numbness and burning in my left shoulder. Following a recent appointment, my left thigh became swollen and I am finding it increasingly difficult to be able to walk, and have had to resort to using a cane. While in a seated position, my groin becomes inflamed and very painful. The only relief that I am have is very minor, and that is by using Ben-Gay as a topical treatment. It is important to note that the only way to effectively feel the ridges, lumps and bumps under my skin is to apply a lotion which will allow one, while palpating, to glide over, rather than push the ridges to the side, and be able to actually feel the areas of concern. While this may seem counter to experience or training, it is advantageous.
At this time the pain has extended down the underside of both arms to my elbows, and also inwards toward my breasts. It hurts terribly, to even have someone apply medicated lotion on the areas. Additionally there are a couple of small nodules in my left armpit which are painful to the touch. In my hips/thigh/groin area, I also have similar issues. During an examination in the ER, the attending physician indicated in his notes that I have swollen lymph nodes in my groin. There are also rubbery areas that feel as if they are ridges along with some larger masses that have long tubular-like structures attached. These begin in my groin and extend around into my lower back. I am also able to crack my lower back in the area of the SI joint which provides minimal relief. All areas that have been affected by this injury, are persistent with inflammation that feels hard as a rock. None of which, have ever healed, gotten better or gone away! Whatever this is, it continues to spread and only get worse. Due to all of this, I am unable to care for myself; bathing, daily oral care, dressing, getting myself to appointments, meal preparation, chores, etc. And as a result, I have lost three teeth because I have been so disabled that I cannot care for myself properly. I chose to have orthodontics as an adult and my teeth turned out beautifully. There is no way I would have purposely allowed myself to neglect my personal care. Of increasing concern is the possibility of a blood clot due to my inability to ambulate. I have also been diagnosed as pre-diabetic because of all of this.
I believe that it is vitally important to mention that Dr. M*****, the Urgent Care Physician that I saw initially at M***** Urgent Care, prescribed a costa-vertebral joint injection. He felt that it was critical that this procedure be performed because of what he saw on the x-ray and the incomprehensible pain that it caused, forcing me to hold my right hand above my head at all times, including in bed. An ice pack was necessary to literally freeze the area, in order for me to be able to fall asleep. According to the Osteopathic Physician, the x-ray revealed that in the area I described as to where the “injury” occurred, it ran alongside an old injury, that is in the costs-vertebral joint area. Unfortunately, the doctor at the Pain Clinic felt it was not necessary, and instead, prescribed PT, which was not available for more than a month. By the time I had my appointment, the Physical Therapist didn’t know what to do, had nothing to offer, and sent me on my way even though I had an extremely large hump on my back that was noticeable through my t-shirt.
I have lost the ability to function physically, both gradually and continually, on a day to day basis. I am now bed-bound due to pain, and I fear this is causing me to embark upon becoming completely incapacitated. Currently, there is nothing further I alone can do. I have hit the point of collapse due to such a wide range of pain and complete exhaustion. So much, that I have had to dictate this letter. I can barely sit or stand. I cannot bend over or crouch down. I can only lay flat. Something that is so very important to make note of is, when I so much as simply sneeze, I am encompassed in violent and excruciating pain.
As of early March 2016, I was 48 yrs. old, 5’5” tall, weighing 130 lbs., and a vivacious, vibrant, highly self-motivated woman. I am currently 51 years old and weigh approximately 205 lbs., and am now a depleted, demoralized, and dilapidated individual. In addition, I have been diagnosed as pre-diabetic. All of this, was caused by the initial injury. I am in constant pain, and for unknown reasons, any type of movement causes excruciating pain and increased inflammation that doesn’t go away. After two years of fighting, without any relief, I literally collapsed. Pain medication helps very little, if at all. As a result of my current situation, my body is shutting down, and I am losing the strength necessary to continue to fight. The continual pain that I am experiencing, has affected my ability to function in all aspects. I am aware of the dangers of taking pain medications, and am sick and tired of taking them. Every day, I am dismayed waking up, because sleep is the only state in which I do not feel the pain. Therefore, sleeping has been my only means and option to be able to escape.
Numerous providers, here in Michigan, have been unable to furnish a diagnosis for this debilitating condition that has developed within me. All available options (several therapies and other approaches listed below) have been tried over the course of the last 40 months, and nothing has been successful. It is now of the utmost urgency, that I be seen by specialty physicians at multi-disciplinary hospital. Again, it is important to note that all of my efforts have been exhausted here in Michigan. I have been seen at the University of Michigan, where I felt like the let me “fall through the cracks”. All of the areas in my body in which I am experiencing pain, can be both felt and seen.
The following is a list of the various medical interventions that I have tried.
Cold Laser Therapy
Trigger Point Injections into knots in both sides of upper back
Left Hip Bursa Injection
SI Joint Injections
Heat and Cold Therapy
Prednisone (both long and short term)
Extensive Blood Work
Infectious Disease Doctor
Multiple Oral Medications
MRI’s and X-rays
With great hope and anticipation, a multi-disciplinary team can facilitate the help I need and effectively bring a conclusion to the maladies from which I am suffering from so very severely.
I am a College Graduate with a BA in Interior Architecture, from the number one college in the country at the time. I desperately wish to return to the life I have been forced to leave behind, and spend precious time that I have been missing, with my 93 year old mother and best friend. Please believe me when I say that if I don’t get help soon, I realize that I will eventually lose my life in this, and it would not be from a lack of tenacity and determination to persevere and regain my health.
I am rapidly declining as the pain continues to spread. I very well acknowledge that I am far and beyond the “normal” recognition for immediate speciality care, for my rare and complex condition”. I fear, that each and every day without treatment, will lead to permanent, irreversible debilitation…if not worse.
Three separate medical specialists have told me that that I have to get to a multi-disciplinary hospital. Due to my circumstances, I am on Medicaid, which those hospitals do not accept because it is administered by the state in which I live, not where the hospitals are located. The last specialist told me to “get on a plane and get yourself there!” I have been seen by numerous doctors and they have all said they have never felt or dealt with anything like this before and they have said, “I’m sorry, but I can’t help you” and send me on my way. Most doctors won’e even touch the areas of inflammation in order to do an examination and I have even been told by one physician “I don’t need to”(examine/touch/feel my hips). I am unable to understand this type of behavior because it seems rudimentary and is so very unsettling.
Currently, my Primary Care Provider has released me from his care because he doesn’t know how, or even seem to possess a desire to help me. It is extremely difficult to find a new provider as most local physicians are not taking new Medicaid patients. Additionally, doctors and hospitals out of state do not accept my insurance, and are not even willing to submit a bill.
I have done everything in my power to get help, and now, thanks to your Television Program, you are my last resort. Please, please….I am crying out for your help!!!
Sunday, April 14, 2019
At this time I am experiencing burning, shooting pain along with pins and needles in both of my legs. This starts at the top of the legs and goes down into my feet. With each day, I am having new episodes of pain, which has inhibited my ability to walk and is rendering me crippled.