- CASE FILE
Chronic pain from back surgeries and undiagnosed stomach issue. Been tested for what seems like everything but no luck.
ABOUT THIS CASE FILE
I have been sick since I was a child, parents thought it was because I didn’t like going to school but in reality I never felt well. Grew up dancing which I had to give up because I was put in a back brace for scoliosis when I was 14. Had my first back surgery on my fathers birthday almost 20 years ago. Since then I have had 4 more back surgeries caused by multiple doctors not doing a good job on the previous surgeries. Also, my back broke between my second and third back surgery. While this is going on, I developed a stomach issue which the doctors put to bed quickly by calling it IBS, this was before IBS was a thing. Have continued to have pain, unexplainable pain all over my body. I was diagnosed with Elhers Danlos Syndrome around the same time as the IBS but the doctor that diagnosed me didn’t treat me and I was left with this new “thing” I had but nothing to help it. I have had numerous epidurals, nerve burns, nerve and facet blocks, and now trigger point therapy to help my constant pain but it always comes back. Was also just recently diagnosed with fibromyalgia and was finally put on medication but it does very little to help but too much help not to take. My stomach is back in main focus because as of December I have been sick everyday. Some days are better than others but I am always aware of my stomach. It doesn’t matter what I eat or don’t eat, drink or not, I have a sharp, stabbing, throbbing pain in my upper abdomen. Even when I was diagnosed with IBS, I never had acid reflux, now I get it all the time. I was told I have SIBO, two different types of bacteria, and was put on antibiotics but they made me feel worse, yet I tried to tough it out and finish the course. I’m constantly being dropped by doctors who just don’t know and don’t want to take the time to figure it out. I have a lot of moving parts and constant pain from several things wrong but have only 2 doctors that have stuck by me. One being my gynecologist which this has nothing to do with but I like to give credit where it’s due, and the other is the best pain management doctor who is constantly trying to come up with new things to help. My depression is terrible as one could imagine with never feeling well and I’m on a bunch of medications for everything. I am in online support groups for the EDS/fibro but all I see is my future waiting with a wheelchair or cane or some other aid to help me get around, and I guess feeling lucky I’m not there yet. For what it’s worth, I know there are people out there way worse than me, but I know that there is something seriously wrong and that I should be able to feel better than I do and I need to figure out how. This can’t be it, it just can’t.