- CASE FILE
Constant Pain- Interstitial cystitis
ABOUT THIS CASE FILE
Interstitial cystitis is a crippling, debilitating illness that effects millions yet is seldom talked about and relieves little to no funding and awareness. While clearly there is a root cause or causes, most doctors treat the symptoms not the cause. This disease disproportionally effects women (98%) and needs awareness brought to this issue for the sake of women’s rights and healthcare. 50% of individuals with this disease are on disability and unable to work and children also suffer from this illness.
Hello, I am 21 years old and am living the life of a dying, crippling 100 year old. and my life has been dramatically changed for the worse by pain and suffering. My bladder hurts severely and constantly (burning etc) and I have to take uribel (a medicine supposed to be used only for utis on a daily basis to be able to even function.) I experience urinary frequency and urgency and urinatie over 60 times a day, and also suffer from lower back/rectal pain, ovarian pain. I am not living the full life of your typical 27 year old, my life is filled with constant drinking of alkaline water, a highly restrictive diet, not leaving the house due to frequency. Bladder instillations do not help me at all and cause UTIs. I am on Elmiron which is FDA approved yet studies show it can cause one to potentially go blind after 20+ years of use. Please help me. I want to discover the root cause or causes to this horrific disease. I am open to anything. Autoimmune? Embedded bacteria not detectable in standard urine tests? Toxic chemicals? Environmental? Genetic? What testing should I have done? Please help me. Thank you so much.