- CASE FILE
Multiple infections caused lifelong disability, but no cure or solution in sight. Family members currently also showing similar symptoms.
ABOUT THIS CASE FILE
Sickly since birth, but tick bite at age 9 worsened things. At 14 had such disabling neurological symptoms that I had to leave school. I had been a math prodigy, but that was wiped away in a descent into fog and sluggishness, with inability to initiate sleep. Was diagnosed with atypical MS (lesions in white matter on MRI and abnormal EEG, balance issues) then diagnosis switched to CNS Systemic Lupus. While given plasma infusion at 15, filter broke, adding Hepatitis C to my issues (that was cured much later wit Harvoni). Devastating fatigue, severe headaches up to 3 times daily, severe brain fog, gastroparesis, back issues with myofascial nerve pain, nearly housebound. 27 years after bite, tested positive for Bartonella (henselae and quintana), Babesia (duncani), Ehrlichia, marginally positive for Lyme (IFA, not Western Blott). Went on antibiotics for Lyme, but although some temporary improvements, no cure. Two years ago one clue came while in hospital for stomach surgery. After showing signs of pneumonia was put on Ciprofloxacin IV. After I got home I noticed suddenly the headaches were gone, mental functionality had returned and I could significantly reduce sleep medications. It took awhile before I mentally connected it with the Ciprofloxacin. Five months later my health began to go downhill again, getting far worse than it ever has before, only can't currently afford out-of-pocket specialists. Now that my sisters are past age 50, they are having health challenges as well, my mother has for many years, and my niece is disabled with epilepsy and autism. I can't help but wonder if they are all connected. I may have been disabled for life, but I don't want them to suffer a similar fate.